144.338 DATA SHARING FOR PATIENT REGISTRIES LIMITED.
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144.338 DATA SHARING FOR PATIENT REGISTRIES LIMITED.
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Subdivision 1. Definitions.
(a)For purposes of this section, the following terms have the meanings given.
(b)"Disability" means any condition or characteristic that renders a person a disabled person. A disabled person is any person who:
(1)has a physical, sensory, or mental impairment which materially limits one or more major life activities;
(2)has a record of such an impairment;
(3)is regarded as having such an impairment; or
(4)has an impairment that is episodic or in remission and would materially limit a major life activity when active.
(c)"Patient registry" means a list, directory, or database of the names, contact information, or other identifying information of individuals who have, had, or are at risk of having a specific disability.
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Subd. 2. Dissemination prohibited.
(a)Except as specifically authorized or required by state or federal law, a person must not add, share, or disseminate the following data to a patient registry without the individual's informed consent to have the individual's data included on the patient registry:
(1)an individual's name or other data that could reasonably be used to identify an individual; or
(2)an individual's contact information, including but not limited to a home address, telephone number, or email addresses.
(b)Nothing in this section prohibits an individual from transmitting the individual's own identifying data to a patient registry.
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Subd. 3. Enforcement.
The attorney general may enforce this section pursuant to section 8.31 , except that the remedies provided by section 8.31, subdivision 3a , do not apply to a violation of this section. A government entity, as defined by section 13.02, subdivision 7a , that violates this section is subject to the remedies and penalties under sections 13.08 , 13.085 , and 13.09 .