211.192 Information to be provided concerning Down syndrome and spina bifida --

326 words·~1 min read·/ky/211-192

A research copy — for the controlling text, always check the official state or federal source. Not legal advice.

By whom -- When.

(1)For the purposes of this section:

(a)"Down syndrome" means a chromosomal condition caused by cell division

that results in the presence of an extra whole or partial copy of chromosome

21; and

(b)"Spina bifida" means a neural tube defect, the most common of which is the

open neural tube defect myelomeningocele.

(2)A health facility as defined in KRS 216B.015(13), physician, health care provider,

nurse midwife, or genetic counselor who renders prenatal care, postnatal care, or

genetic counseling, upon receipt of a positive test result from a test for Down

syndrome or spina bifida, shall provide the expectant or new parent with

information provided by the Cabinet for Health and Family Services under

subsection

(3)of this section.

(3)The Cabinet for Health and Family Services shall make available to any person who

renders prenatal care, postnatal care, or genetic counseling to parents who receive a

prenatal or postnatal diagnosis of Down syndrome or spina bifida and to any person

who has received a positive test result from a test for Down syndrome or spina

bifida the following:

(a)Up-to-date, evidence-based, written information about Down syndrome or

spina bifida that has been reviewed by medical experts and Down syndrome or

spina bifida organizations and includes information on physical,

developmental, educational, and psychosocial outcomes, life expectancy,

clinical course, intellectual and functional development, and treatment

options; and

(b)Contact information regarding support programs and services for expectant

and new parents of children with Down syndrome or spina bifida, including

information hotlines specific to Down syndrome or spina bifida, resource

centers or clearinghouses, national and local Down syndrome or spina bifida

organizations such as Down Syndrome of Louisville, Down Syndrome

Association of Central Kentucky, Down Syndrome Association of South

Central Kentucky, Green River Area Down Syndrome Association, Down

Syndrome Association of Greater Cincinnati Serving Northern Kentucky,

Council on Developmental Disabilities, the Spina Bifida Association of

Kentucky, and other education and support programs.