Sec. 14. Childhood cancer demonstration model and standard of care
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Section 1115A(b)(2) of the Social Security Act ( 42 U.S.C. 1315a(b)(2) ) is amended— in subparagraph (A), by striking the period at the end and inserting , and shall include the model described in clause (xxviii) of such subparagraph. ; and in subparagraph (B), by adding at the end the following new clause: A local service delivery and State payment model for individuals up to age 21 enrolled under a State plan (or waiver of such plan) under title XIX or a State child health plan (or waiver of such plan) under title XXI of such Act ( 42 U.S.C. 1397aa et seq. ) who have been diagnosed with cancer and who are in the survivorship phase of their treatment.
Such model shall— provide for the creation of a survivorship plan, that can be integrated into an electronic health record, for such individuals and disseminate the plan to such individuals, families of such individuals, and the health providers of such individuals; offer States and local providers technical assistance to develop and implement different survivorship care planning services; develop a standard of care based on the Children’s Oncology Group
(COG)Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers to manage the transition of such individuals from active treatment to general care with the informed knowledge of such individuals; and provide incentives to health care providers for treating such individuals through such model that includes at least two survivorship care planning visits. .
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