Sec. 13. Promoting State innovations to ease transitions to the primary care setting for children with cancer
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Not later than 12 months after the date of the enactment of this Act, the Secretary of Health and Human Services (in this section referred to as the Secretary ) shall convene a stakeholder group of representatives of childhood cancer advocacy organizations, Medicaid and CHIP beneficiaries, providers with childhood cancer expertise, the National Association of Medicaid Directors, and other relevant representatives to develop best practices (and submit to the Secretary and Congress a report on such best practices) for States to ease the transition from active oncological care to primary care of children or adolescents with cancer, including best practices for ensuring development of and delivery of survivorship care plans to patients, families, and primary care providers and best practices for such transitions occurring under the State Medicaid plan under title XIX of the Social Security Act ( 42 U.S.C. 1396 et seq. ) or State child health plan under title XXI of such Act ( 42 U.S.C. 1397aa et seq. ), as applicable.
Such best practices shall include practices to ensure that— cancer care providers transfer diagnosis and treatment information to patient primary care providers; cancer care providers develop an individualized survivorship care plan of potential late effects; cancer care providers deliver the plan to the patient and family members through an in-person visit; cancer care providers deliver the plan to the primary care provider through electronic health records or other means; and relevant health entities develop systems that promote the coordination and effective transition of care between cancer care providers, primary care physicians, and other health care professionals.
The Secretary shall work with States on innovative strategies, based on the best practices developed under on the best practices identified under the process described in subsection (a)(1), to ease the transition from active oncological care to primary care of child or adolescent with cancer ensuring development of and delivery of survivorship care plans to patients, families, and primary care providers and transition coverage under the State Medicaid plan under title XIX of the Social Security Act ( 42 U.S.C. 1396 et seq. ) or State child health plan under title XXI of such Act ( 42 U.S.C. 1397aa et seq. ), as applicable.
Not later than 1 year after the date the stakeholder group is convened under subsection (a), the Secretary, acting through the Administrator of the Centers for Medicare & Medicaid Services, shall issue guidance to State health officials, based on best practices developed under subsection (a)(1), regarding opportunities to design demonstration projects under the Social Security Act to improve care transitions for children and adolescents with cancer who transition from oncological care to primary care and who are otherwise eligible to receive medical assistance under title XIX of such Act ( 42 U.S.C. 1396 et seq. ) or title XXI of such Act ( 42 U.S.C. 1397aa et seq. ).
The Federal Advisory Committee Act shall not apply to the stakeholder group convened under paragraph (1).
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Sec. 13
Promoting State innovations to ease transitions to the primary care setting for children with cancer
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