Sec. 302. Grants to improve care for pediatric cancer survivors

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Section 417E of the Public Health Service Act ( 42 U.S.C. 285a–11 ), as amended by section 101, is further amended— in the section heading, by striking and inserting research and awareness ; and research, awareness, and survivorship by striking subsection

(b)and inserting the following: The Director of NIH, with guidance from the Director of the Institute, in coordination with ongoing research activities, shall make grants to entities to conduct research relating to— needs and outcomes of pediatric cancer survivors within minority or other medically underserved populations; health disparities in pediatric cancer survivorship outcomes within minority or other medically underserved populations; barriers that pediatric cancer survivors within minority or other medically underserved populations face in receiving follow-up care; and familial, socioeconomic, and other environmental factors and the impact of such factors on treatment outcomes and survivorship. In making grants for research under subparagraph (A)(i) on pediatric cancer survivors within minority or other medically underserved populations, the Director of NIH shall ensure that such research addresses both the physical and the psychological needs of such survivors. The Director of NIH, in coordination with ongoing research activities, shall conduct or support research on follow-up care for pediatric cancer survivors, with special emphasis given to— the development of indicators used for long-term patient tracking and analysis of the late effects of cancer treatment for pediatric cancer survivors; the identification of risk factors associated with the late effects of cancer treatment; the identification of predictors of neurocognitive and psychosocial outcomes; the identification of the molecular underpinnings of long-term complications; the development of risk prediction models to identify those at highest risk of long-term complications; initiatives to protect cancer survivors from the late effects of cancer treatment, by developing targeted interventions to reduce the burden of morbidity borne by cancer survivors; transitions in care for pediatric cancer survivors; training of professionals to provide linguistically and culturally competent follow-up care to pediatric cancer survivors; different models of follow-up care; and examining the cost-effectiveness of the different models of follow-up care. .

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42 USC 285a–11

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Sec. 302

Grants to improve care for pediatric cancer survivors

Cite42 USC 285a–11

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