Sec. 301. Cancer survivorship programs
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Subpart 1 of part C of title IV of the Public Health Service Act ( 42 U.S.C. 285 et seq. ) is amended by adding at the end the following: Not later than 1 year after the date of enactment of this section, the Secretary shall make grants to eligible entities to establish pilot programs to develop, study, or evaluate model systems for monitoring and caring for childhood cancer survivors throughout their lifespan, including evaluation of shared care and medical home and clinic based models for transition to adult care.
In this section, the term eligible entity means— a medical school; a children’s hospital; a cancer center; a community-based medical facility; or any other entity with significant experience and expertise in treating survivors of childhood cancers. The Secretary may make a grant under this section to an eligible entity only if the entity agrees— to use the grant to establish a pilot program to develop, study, or evaluate one or more model systems for monitoring and caring for cancer survivors; and in developing, studying, and evaluating such systems, to give special emphasis to the following:
Design of protocols for different models of follow-up care, monitoring, and other survivorship programs (including peer support and mentoring programs). Development of various models for providing multidisciplinary care. Dissemination of information and the provision of training to health care providers about how to provide linguistically and culturally competent follow-up care and monitoring to cancer survivors and their families. Development of support programs to improve the quality of life of cancer survivors.
Design of systems for the effective transfer of treatment information and care summaries from cancer care providers to other health care providers (including risk factors and a plan for recommended follow-up care). Dissemination of the information and programs described in subparagraphs
(A)through
(E)to other health care providers (including primary care physicians and internists) and to cancer survivors and their families, where appropriate. Development of initiatives that promote the coordination and effective transition of care between cancer care providers, primary care physicians, and mental health professionals. The Secretary shall, not later than 1 year after the date of enactment of this Act, convene a Workforce Development Collaborative on Medical and Psychosocial Care for Pediatric Cancer Survivors (referred to in this paragraph as the Collaborative ). The Collaborative shall be a cross-specialty, multidisciplinary group composed of educators, consumer and family advocates, and providers of psychosocial and biomedical health services. The Collaborative shall submit to the Secretary a report establishing a plan to meet the following objectives for medical and psychosocial care workforce development: Identifying, refining, and broadly disseminating to health care educators information about workforce competencies, models, and curricula relevant to providing medical and psychosocial services to persons surviving pediatric cancers. Adapting curricula for continuing education of the existing workforce using efficient workplace-based learning approaches. Developing the skills of faculty and other trainers in teaching psychosocial health care using evidence-based teaching strategies. Strengthening the emphasis on psychosocial health care in educational accreditation standards and professional licensing and certification exams by recommending revisions to the relevant oversight organizations. Evaluating the effectiveness of patient navigators in pediatric cancer survivorship care. Evaluating the effectiveness of peer support programs in the psychosocial care of pediatric cancer patients and survivors. . Section 3 of the Hematological Cancer Research Investment and Education Act of 2002 ( Public Law 107–172 ; 116 Stat. 541) is amended by striking section 419C and inserting section 417C . The amendment made by paragraph
(1)shall take effect as if included in section 3 of the Hematological Cancer Research Investment and Education Act of 2002 ( Public Law 107–172 ; 116 Stat. 541).
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U.S. Code
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- Pub. L. 107-172
- 116 Stat. 541
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