Sec. 4. Quality of life patient and professional awareness grants program initiative
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Title III of the Public Health Service Act ( 42 U.S.C. 241 et seq. ) is amended by adding at the end the following new part: Not later than 6 months after the date of the submission of the report by the Patient-Centered Health Care and Quality of Life Stakeholder Strategic Summit under section 3(e) of the Patient Centered Quality Care for Life Act , the Secretary, through the Director of the Centers for Disease Control and Prevention, shall establish a national quality of life education and awareness grants program initiative for seriously ill patients, families of such patients, and health professionals who treat such patients for the purposes of encouraging an increased demand for and delivery of integrated and patient-centered care for managing pain and symptoms of such patients and improving the quality of life of such patients.
Under the initiative, the Secretary shall, subject to subsection (h), award competitive grants to eligible entities described in subsection
(b)to develop new and expand existing information, resources, and communication materials about symptom management and other aspects of patient-centered care as an integral part of quality care for serious illnesses such as cancer; heart, renal and liver failure; lung disease; and Alzheimer’s disease and related dementias. Such materials shall be presented in a variety of formats (such as online, print, and public service announcement). For purposes of this section, an eligible entity includes only a State health department, community health center, State or territory program supported by the National Comprehensive Cancer Control Program of the Centers for Disease Control and Prevention, health profession school, chronic disease or cancer center, academic medical center, physician practice, home health care agency, palliative care or psychosocial care team (as defined in subsection (g)), hospice program, patient non-profit organization (as defined in subsection (g)), clinical pastoral education program, long-term care facility, faith community organization, or other public or private entity or organization addressing patient-centered care and quality of life concerns of seriously ill patients. To be eligible to receive a grant under this section, an entity shall submit to the Secretary an application at such time, in such manner, and containing such information as the Director may require, including assurances that the entity will— evaluate programs carried out by the entity through a grant provided under this section; submit to the Secretary a report on the findings of such evaluations; and coordinate the dissemination of such findings with the Secretary. An entity awarded a grant under this section shall use such grant to carry out programs described in subsection (e), for patients and families of such patients that further the purposes described in subsection (a). Programs described in this subsection, for which a grant awarded under this section may be used, include programs to— navigate the health system, including assistance to patients with finding health professionals to support quality of life needs, care decisionmaking and coordination, and transitions across care settings; provide general advocacy on behalf of patients and survivors to provide patients information to help them effectively communicate with health care providers about pain, physical and psychosocial symptoms, and barriers they are facing in adhering to curative or disease-directed treatments; encourage health professionals to request coordinated patient-centered care consults for patients that are integrated alongside disease directed treatment in various care settings; and collect and analyze data related to the effectiveness of the initiative under subsection (a). In carrying out the grant program under this section, the Secretary shall give priority to applications that include an emphasis on addressing outreach efforts for seriously ill patients who are among medically underserved populations (as defined in section 1302(7)) and families of such patients or health professionals serving medically underserved populations. Such populations would include pediatric patients, young adult and adolescent patients, racial and ethnic minority populations, and other priority populations specified by the Secretary. For purposes of this section: The term psychosocial care team means health professionals focused on addressing social and emotional concerns of serious illness, and may include professionals such as social workers, psychiatrists, psychologists, nurses, child life specialists, teachers, chaplains, spiritual counselors, physical and occupational therapists, nutritionists, integrative medicine specialists, patient service coordinators, patient navigators, and patient representatives. The term patient non-profit organization means a nonprofit entity primarily engaged in raising funds for health-related research, such as disease prevention, health education, and patient services. There is authorized to be appropriated to carry out this section such sums as are necessary. .
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Sec. 4
Quality of life patient and professional awareness grants program initiative
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