Sec. 3. National patient-centered health care and quality of life stakeholder strategic summit
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Not later than one year after the date of the enactment of this section, the Secretary of Health and Human Services shall convene a Patient-Centered Health Care and Quality of Life Stakeholder Strategic Summit (in this Act to be referred to as the Summit ) to be composed of individuals with appropriate expertise to— analyze key health system barriers to providing patient-centered health care that integrates symptom management and other aspects of coordinated or palliative care; and identify strategic solutions for collectively addressing quality of life concerns for the rapidly expanding population of patients and survivors facing serious, complex, and chronic illness in the United States and for the families of such patients and survivors.
The Summit shall include representatives from at least the following: Federal agencies, including— the Department of Health and Human Services, including from the Centers for Disease Control and Prevention, the Health Resources and Services Administration, the Agency for Healthcare Research and Quality, the Centers for Medicare & Medicaid Services, and the National Institutes of Health; the Department of Veterans Affairs; and the Department of Defense. Private organizations, including— health professional organizations that represent physicians, nurses, pharmacists, and social workers; patient non-profit organizations (as defined in section 4(g)); private health insurance organizations; faith community representatives; and other professionals as deemed appropriate by the Secretary.
The Secretary shall establish a Summit Steering Committee to plan the Summit, coordinate participants of the Summit, develop an agenda for the Summit that is in accordance with subsection (d), and draft a summary report detailing recommendations made by the participants of the Summit for a national strategic action agenda to improve patient-centered care and quality of life (in this Act to be referred to as the National Action Agenda ) in accordance with subsection (d)(4). The Secretary shall appoint the representatives described in paragraph (2)(A) and shall seek nominations from relevant stakeholders and, from such nominations, appoint representatives described in paragraph (2)(B).
The Summit Steering Committee shall consist of at least the following members: The Secretary, who will serve as chair of the Committee. Four representatives from Federal agencies described in subsection
(b)(or any other Federal agency deemed appropriate by the Secretary), to be appointed by the Secretary. Six representatives of health professionals (with each of such 6 representatives having research, clinical, and teaching or mentoring expertise). Three representatives of patient advocacy organizations. One representative of a private health insurance organization. One representative of faith communities. Two physicians. Two nurses. One social worker. The agenda for the Summit shall focus on specific areas that include at least the following: Improving communication and coordination of health care among primary care providers, medical specialists, and other health professionals and seriously ill patients and families of such patients to ensure that symptoms are managed and other quality of life needs are met to support the continued functioning and well-being of such patients. Examining the appropriate roles of both physician and non-physician professionals (such as nurse practitioners, clinical social workers, physician assistants, and other patient or survivor navigators or case coordinators) in strengthening access to integrated, coordinated, or palliative care across care settings for all seriously ill patients and families of such patients. Examining the role of health information technology in promoting delivery of integrated care to such patients. Developing recommendations for a National Action Agenda, which shall specify research, surveillance, health information technology, workforce training, delivery of care, and communication activities required to collectively address barriers to achieving integrated palliative care for seriously ill patients in all care settings. Such agenda shall include strategies for reducing disparities among medically underserved populations. Not later than one year after the last day of the Summit, the Secretary of Health and Human Services shall submit to the Committee on Energy and Commerce of the House of Representatives and the Committee on Health, Education, Labor, and Pensions of the Senate a report on the recommendations made by the participants of the Summit and shall make such recommendations available to the public. For purposes of this Act, the term seriously ill patient means an individual who has a serious health condition (as defined in section 101(11) of the Family and Medical Leave Act of 1993 ( 26 U.S.C. 2911(11) )). There is authorized to be appropriated to carry out this section such sums as are necessary for each of the fiscal years 2014 through 2018.
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- 26 USC 2911(11)
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Sec. 3
National patient-centered health care and quality of life stakeholder strategic summit
Cite26 USC 2911(11)
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