Sec. 2. Education, awareness, and training about children’s cardiac conditions to increase early diagnosis and prevent death
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Part P of title III of the Public Health Service Act ( 42 U.S.C. 280g et seq. ) is amended by adding at the end the following: Not later than 18 months after the date of enactment of the SAFE PLAY Act , the Secretary, acting through the Director of the Centers for Disease Control and Prevention (referred to in this section as the Director ) and in consultation with national patient advocacy and health professional organizations experts in cardiac health, including all forms of cardiomyopathy, shall develop public education and awareness materials and resources to be disseminated to school administrators, educators, school health professionals, coaches, families, and other appropriate individuals.
The materials and resources shall include— information to increase education and awareness of high risk cardiac conditions and genetic heart rhythm abnormalities that may cause sudden cardiac arrest in children, adolescents, and young adults, including— cardiomyopathy; conditions such as long QT syndrome, Brugada syndrome, catecholaminergic polymorphic ventricular tachycardia, short QT syndrome, Wolff-Parkinson-White syndrome; and other cardiac conditions, as determined by the Secretary; sudden cardiac arrest and cardiomyopathy risk assessment worksheets to increase awareness of warning signs and symptoms of life-threatening cardiac conditions in order to prevent acute cardiac episodes and increase the likelihood of early detection and treatment; information and training materials for emergency interventions such as cardiopulmonary resuscitation (referred to in this section and in section 399V–7 as CPR ) and ways to obtain certification in CPR delivery; guidelines and training materials for the proper placement and use of life-saving emergency equipment such as automatic external defibrillators (referred to in this section and section 399V–7 as AED ) and ways to obtain certification on AED usage; and recommendations for how schools, childcare centers, and local youth athletic organizations can develop and implement cardiac emergency response plans, including recommendations about how a local educational agency (as defined in section 9101 of the Elementary and Secondary Education Act of 1965 (20 U.S.C. 7801)) can apply such response plans to all students enrolled in the public schools served by such local educational agency.
The Secretary, acting through the Director, shall develop and update, as necessary and appropriate, the materials and resources described in subsection
(a)and, in support of such effort, the Secretary is encouraged to establish an advisory panel that includes the following members: Representatives from national patient advocacy organizations, including— not less than 1 organization dedicated to pediatrics; not less than 1 organization dedicated to school-based wellness; not less than 1 organization dedicated to cardiac research, health, and awareness; and not less than 1 organization dedicated to advocacy and support for individuals with cognitive impairments or developmental disabilities. Representatives of medical professional societies, including pediatrics, cardiology, emergency medicine, and sports medicine. A representative of the Centers for Disease Control and Prevention. Representatives of other relevant Federal agencies. Representatives of schools, such as administrators, educators, sports coaches, and nurses. Not later than 30 months after the date of enactment of the SAFE PLAY Act , the Secretary, acting through the Director, shall disseminate the materials and resources described in subsection
(a)in accordance with the following: The Secretary shall make available such written materials and resources to State educational agencies (as defined in section 9101 of the Elementary and Secondary Education Act of 1965 (20 U.S.C. 7801)) to distribute— to school administrators, educators, school health professionals, coaches, and parents, guardians, or other caregivers, the cardiomyopathy education and awareness materials and resources described in subsection (a); to parents, guardians, or other caregivers, the cardiomyopathy and sudden cardiac arrest risk assessment worksheets described in subsection (a)(2); and to school administrators, school health professionals, and coaches— the information and training materials described in subsection (a)(3); and the guidelines and training materials described in subsection (a)(4); and to school administrators, educators, coaches, and youth sports organizations, the recommendations described in subsection (a)(5). The Secretary shall make available such materials and resources to State and local health departments, pediatricians, hospitals, and other health professionals, such as nurses and first responders. The Secretary, acting through the Director, shall post the materials and resources developed under subsection
(a)on the public Internet website of the Centers for Disease Control and Prevention. The Director shall maintain on such Internet website such additional and updated information regarding the resources and materials under subsection
(a)as necessary to ensure such information reflects the latest standards. State educational agencies are encouraged to create Internet webpages dedicated to disseminating the information and resources developed under subsection
(a)to the general public, with an emphasis on targeting dissemination to families of students and students. The information regarding the resources and materials under subsection
(a)shall be made available in a format and in a manner that is readily accessible to individuals with cognitive and sensory impairments. Not later than 3 years after the date of the enactment of this section, and annually thereafter, the Secretary shall submit to Congress a report identifying the steps taken to increase public education and awareness of higher risk cardiac conditions that may lead to sudden cardiac arrest. In this section: The term school administrator means a principal, director, manager, or other supervisor or leader within an elementary school or secondary school (as such terms are defined under section 9101 of the Elementary and Secondary Education Act of 1965 ( 20 U.S.C. 7801 )), State-based early education program, or childcare center. The term school means an early education program, childcare center, or elementary school or secondary school (as such terms are so defined) that is not an Internet- or computer-based community school. There are authorized to be appropriated to carry out this section such sums as may be necessary for fiscal years 2015 through 2020. The Secretary, in consultation with the Secretary of Education, shall award grants to eligible local educational agencies— to enable such local educational agencies to purchase AEDs and implement nationally recognized CPR and AED training courses; or to enable such local educational agencies to award funding to eligible schools that are served by the local educational agency to purchase AEDs and implement nationally recognized CPR and AED training courses. An eligible local educational agency receiving a grant under this section, or an eligible school receiving grant funds under this section through an eligible local educational agency, shall use the grant funds— to pay a nationally recognized training organization, such as the American Heart Association, the American Red Cross, or the National Safety Council, for instructional, material, and equipment expenses associated with the training necessary to receive CPR and AED certification in accordance with the materials and resources developed under section 399V–6(a)(3); or if the local educational agency or an eligible school served by such agency meets the conditions described under subsection (c)(2), to purchase AED devices for eligible schools and pay the costs associated with obtaining the certifications necessary to meet the guidelines established in section 399V–6(a)(4). To be eligible to receive a grant under this section, a local educational agency shall submit an application to the Secretary at such time, in such manner, and containing such information and certifications as such Secretary may reasonably require. To be eligible to use grant funds to purchase AED devices as described in subsection (b)(2), an eligible local educational agency shall demonstrate to the Secretary that such local educational agency or an eligible school served by such agency has or intends to implement an AED training program in conjunction with a CPR training program and has or intends to implement an emergency cardiac response plan as of the date of the submission of the grant application. The Secretary shall award grants under this section to eligible local educational agencies based on one or more of the following priorities: A demonstrated need for initiating a CPR or AED training program in an eligible school or a community served by an eligible school, which may include— schools that do not already have an automated AED on school grounds; schools in which there are a significant number of students on school grounds during a typical day, as determined by the Secretary; schools for which the average time required for emergency medical services (as defined in section 330J(f)) to reach the school is greater than the average time required for emergency medical services to reach other public facilities in the community; and schools that have not received funds under the Rural Access to Emergency Devices Act (42 U.S.C. 254c note). A demonstrated need for continued support of an existing CPR or AED training program in an eligible school or a community served by an eligible school. A demonstrated need for expanding an existing CPR or AED training program by adding training in the use of an AED. Previously identified opportunities to encourage and foster partnerships with and among community organizations, including emergency medical service providers, fire and police departments, nonprofit organizations, public health organizations, parent-teacher associations, and local and regional youth sports organizations to aid in providing training in both CPR and AED usage and in obtaining AED equipment. Recognized opportunities to maximize the use of funds provided under this section. To be eligible to receive a grant under this section, an eligible local educational agency shall provide matching funds from non-Federal sources in an amount equal to not less than 25 percent of the total grant amount. The Secretary may waive the requirement of paragraph
(1)for an eligible local educational agency if the number of children counted under section 1124(c)(1)(A) of the Elementary and Secondary Education Act of 1965 for the local educational agency is 20 percent or more of the total number of children aged 5 to 17, inclusive, served by the eligible local educational agency. In this section: The term eligible local educational agency means a local educational agency, as defined in section 9101 of the Elementary and Secondary Education Act of 1965, that has established a plan to follow the guidelines and carry out the recommendations described under section 399V–6(a) regarding cardiac emergencies. The term eligible school means a public elementary, middle, or secondary school, including any public charter school that is considered a local educational agency under State law, and which is not an Internet- or computer-based community school. There are authorized to be appropriated to carry out this section such sums as may be necessary for each of the fiscal years 2015 through 2020. The Director of the Centers for Disease Control and Prevention shall develop data collection methods, to be included in the School Health Policies and Practices Survey authorized under section 301, that are being carried out as of the date of enactment of the SAFE PLAY Act , to determine the degree to which school administrators, educators, school health professionals, coaches, families, and other appropriate individuals have an understanding of cardiac issues. Such data collection methods shall be designed to collect information about— the ability to accurately identify early symptoms of a cardiac condition, such as cardiomyopathy, cardiac arrest, and sudden cardiac death; the dissemination of training described in section 399V–6(a)(3) regarding the proper performance of cardiopulmonary resuscitation; and the dissemination of guidelines and training described in section 399V–6(a)(4) regarding the placement and use of automatic external defibrillators. .
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Sec. 2
Education, awareness, and training about children’s cardiac conditions to increase early diagnosis and prevent death
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