Sec. 9. Grants for increasing public awareness of advance care planning and advanced illness care

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The Secretary of Health and Human Services (in this section referred to as the Secretary ) is authorized to award grants to entities described in subsection

(d)to develop online training modules, decision support tools, and instructional materials for individuals, family caregivers, and health care providers that include— for healthy individuals, the importance of— identifying an individual who will make treatment decisions in the event of future cognitive incapacity; discussing values and goals relevant to catastrophic injury or illness; and completing an advance directive that— appoints a surrogate; and documents goals and values and other information that should be considered in making treatment decisions; for individuals with advanced illness, the importance of— articulating goals of care; understanding prognosis and typical disease trajectory; evaluating treatment options in light of goals of care; developing a treatment plan; and documenting the treatment plan on advance directives, portable treatment orders, and other documentation forms used in the locality where the plan is to be executed; the role and effective use of State and other advance directive forms and portable treatment orders; and the range of services for individuals facing advanced illness, including planning services, palliative care, and hospice care. Any grant awarded under paragraph

(1)shall be for a period of 3 years. The Secretary is authorized to award grants to entities described in subsection

(d)to establish and maintain a website and telephone hotline to disseminate resources developed under subsection

(a)and materials designed by the Department of Health and Human Services Center for Faith-Based and Neighborhood Partnerships for faith communities. Any grant awarded under paragraph

(1)shall be for a period of 5 years. The Secretary shall take into account the ability of an entity to sustain the activities described in paragraph

(1)beyond the 5-year grant period in determining whether to award a grant under paragraph

(1)to the entity. The Secretary is authorized to award grants to entities described in subsection

(d)to conduct a national public education campaign to raise public awareness of advance care planning and advanced illness care, including the availability of the resources created under subsections

(a)and (b). Any grant awarded under paragraph

(1)shall be for a period of 5 years. Entities described in this subsection are public or private entities (including States or political subdivisions of a State, faith-based organizations, and religious educational institutions), or a consortium of any such entities. There are authorized to be appropriated to the Secretary— for purposes of making grants under subsection (a), $5,000,000 for fiscal year 2015, to remain available until expended; for purposes of making grants under subsection (b), $5,000,000 for fiscal year 2015, to remain available until expended; and for purposes of making grants under subsection (c), $5,000,000 for fiscal year 2015 to remain available until expended. None of the funds appropriated under paragraph

(1)shall be used to— develop a model advance directive; develop or employ a dollars-per-quality adjusted life year (or similar measure that discounts the value of a life because of an individual's disability); or make a grant to a private entity that advocates, promotes, or facilitates any item or procedure for which funding is unavailable under the Assisted Suicide Funding Restriction Act of 1997 ( Public Law 105–12 ).

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Pub. L. 105-12

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Sec. 9

Grants for increasing public awareness of advance care planning and advanced illness care

Pub. L.Pub. L. 105-12

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