Sec. 4006. EMPOWERING PATIENTS AND IMPROVING PATIENT ACCESS TO THEIR ELECTRONIC HEALTH INFORMATION
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## SEC. 4006 EMPOWERING PATIENTS AND IMPROVING PATIENT ACCESS TO THEIR ELECTRONIC HEALTH INFORMATION ###
(a)Use of Health Information Exchanges for Patient Access Section 3009 of the Public Health Service Act (42 U.S.C. 300jj-19) is amended by adding at the end the following: > > ### “(c) Promoting Patient Access to Electronic Health Information Through Health Information Exchanges > > > #### “(1) In general > > The Secretary shall use existing authorities to encourage partnerships between health information exchange organizations and networks and health care providers, health plans, and other appropriate entities with the goal of offering patients access to their electronic health information in a single, longitudinal format that is easy to understand, secure, and may be updated automatically. > > > #### “(2) Education of providers > > The Secretary, in coordination with the Office for Civil Rights of the Department of Health and Human Services, shall— > > > ##### “(A) > > educate health care providers on ways of leveraging the capabilities of health information exchanges (or other relevant platforms) to provide patients with access to their electronic health information; > > > ##### “(B) > > clarify misunderstandings by health care providers about using health information exchanges (or other relevant platforms) for patient access to electronic health information; and > > > ##### “(C) > > to the extent practicable, educate providers about health information exchanges (or other relevant platforms) that employ some or all of the capabilities described in paragraph (1). > > > #### “(3) Requirements > > In carrying out paragraph (1), the Secretary, in coordination with the Office for Civil Rights, shall issue guidance to health information exchanges related to best practices to ensure that the electronic health information provided to patients is— > > > ##### “(A) > > private and secure; > > > ##### “(B) > > accurate; > > > ##### “(C) > > verifiable; and > > > ##### “(D) > > where a patient’s authorization to exchange information is required by law, easily exchanged pursuant to such authorization. > > > #### “(4) Rule of Construction > > Nothing in this subsection shall be construed to preempt State laws applicable to patient consent for the access of information through a health information exchange (or other relevant platform) that provide protections to patients that are greater than the protections otherwise provided for under applicable Federal law. > > > ### “(d) Efforts To Promote Access to Health Information > > The National Coordinator and the Office for Civil Rights of the Department of Health and Human Services shall jointly promote patient access to health information in a manner that would ensure that such information is available in a form convenient for the patient, in a reasonable manner, without burdening the health care provider involved. > > > ### “(e) Accessibility of Patient Records > > > #### “(1) Accessibility and updating of information > > > ##### “(A) In general > > The Secretary, in consultation with the National Coordinator, shall promote policies that ensure that a patient’s electronic health information is accessible to that patient and the patient’s designees, in a manner that facilitates communication with the patient’s health care providers and other individuals, including researchers, consistent with such patient’s consent. > > > ##### “(B) Updating education on accessing and exchanging personal health information > > To promote awareness that an individual has a right of access to inspect, obtain a copy of, and transmit to a third party a copy of such individual’s protected health information pursuant to the Health Information Portability and Accountability Act, Privacy Rule (subpart E of part 164 of title 45, Code of Federal Regulations), the Director of the Office for Civil Rights, in consultation with the National Coordinator, shall assist individuals and health care providers in understanding a patient’s rights to access and protect personal health information under the Health Insurance Portability and Accountability Act of 1996 (Public Law 104-191), including providing best practices for requesting personal health information in a computable format, including using patient portals or third-party applications and common cases when a provider is permitted to exchange and provide access to health information.” > . > > #### “(2) Certifying usability for patients > > In carrying out certification programs under section 3001(c)(5), the National Coordinator may require that— > > > ##### “(A) > > the certification criteria support— > > > ###### “(i) > > patient access to their electronic health information, including in a single longitudinal format that is easy to understand, secure, and may be updated automatically; > > > ###### “(ii) > > the patient’s ability to electronically communicate patient-reported information (such as family history and medical history); and > > > ###### “(iii) > > patient access to their personal electronic health information for research at the option of the patient; and > > > ##### “(B) > > the HIT Advisory Committee develop and prioritize standards, implementation specifications, and certification criteria required to help support patient access to electronic health information, patient usability, and support for technologies that offer patients access to their electronic health information in a single, longitudinal format that is easy to understand, secure, and may be updated automatically.” > . ###
(b)Access to Information in an Electronic Format Section 13405(e) of the Health Information Technology for Economic and Clinical Health Act (42 U.S.C. 17935) is amended— ####
(1)in paragraph (1), by striking “and” at the end; ####
(2)by redesignating paragraph
(2)as paragraph (3); and ####
(3)by inserting after paragraph (1), the following: > > #### “(2) > > if the individual makes a request to a business associate for access to, or a copy of, protected health information about the individual, or if an individual makes a request to a business associate to grant such access to, or transmit such copy directly to, a person or entity designated by the individual, a business associate may provide the individual with such access or copy, which may be in an electronic form, or grant or transmit such access or copy to such person or entity designated by the individual; and” > .
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- Pub. L. 104-191
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Sec. 4006
EMPOWERING PATIENTS AND IMPROVING PATIENT ACCESS TO THEIR ELECTRONIC HEALTH INFORMATION
Pub. L.Pub. L. 104-191
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