Sec. 3. EVALUATING THE EFFECTIVENESS OF NEWBORN AND CHILD SCREENING AND FOLLOWUP PROGRAMS
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## SEC. 3 EVALUATING THE EFFECTIVENESS OF NEWBORN AND CHILD SCREENING AND FOLLOWUP PROGRAMS Section 1110 of the Public Health Service Act (42 U.S.C. 300b-9) is amended— ####
(1)in the section heading, by inserting “and followup” after “child screening”; ####
(2)in subsection (a), by striking “of screening,” and inserting “, including with respect to timeliness, of screening, followup,”; ####
(3)in subsection (b)— #####
(A)in paragraph (1)— ######
(i)by striking “counseling, testing” and inserting “treatment, counseling, testing, followup,”; and ######
(ii)by inserting before the semicolon the following: “, including, as appropriate, through the assessment of health and development outcomes for such children through adolescence”; #####
(B)in paragraph (2)— ######
(i)by striking “counseling, testing” and inserting “treatment, counseling, testing, followup,”; ######
(ii)by inserting “in a timely manner” after “in newborns and children”; and ######
(iii)by striking “or” at the end; #####
(C)in paragraph (3), by striking the period at the end and inserting a semicolon; and #####
(D)by adding at the end the following: > > #### “(4) > > methods that may be identified to improve quality in the diagnosis, treatment, and disease management of heritable disorders based on gaps in services or care; or > > > #### “(5) > > methods or best practices by which the eligible entities described in section 1109 can achieve in a timely manner— > > > ##### “(A) > > collection, delivery, receipt, and screening of newborn screening specimens; and > > > ##### “(B) > > diagnosis of heritable disorders in newborns.” > ; and ####
(4)by striking subsection
(d)(relating to authorization of appropriations).
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Sec. 3
EVALUATING THE EFFECTIVENESS OF NEWBORN AND CHILD SCREENING AND FOLLOWUP PROGRAMS
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