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Code · STATUTE-COMPILATIONS · Newborn Screening Saves Lives Reauthorization Act of 2014 · Sec. 11

Sec. 11. REPORTS TO CONGRESS

327 words·~1 min read·/statute-compilations/comps-11407/sec-11

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## SEC. 11 REPORTS TO CONGRESS ###
(a)GAO Report on Timeliness of Newborn Screening ####
(1)In general Not later than 2 years after the date of enactment of this Act, the Comptroller General of the United States shall submit a report to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives concerning the timeliness of screening for heritable disorders in newborns. ####
(2)Contents The report submitted under paragraph
(1)shall include the following: #####
(A)An analysis of information regarding the timeliness of newborn screening, which may include the time elapsed from birth to specimen collection, specimen collection to receipt by laboratory, specimen receipt to reporting, reporting to followup testing, and followup testing to confirmed diagnosis. #####
(B)A summary of any guidelines, recommendations, or best practices available to States and health care providers intended to support a timely newborn screening system. #####
(C)An analysis of any barriers to maintaining a timely newborn screening system which may exist and recommendations for addressing such barriers. ###
(b)Report by Secretary **[**[42 U.S.C. 300b-17](/us/usc/t42/s300b-17)**]** ####
(1)In general The Secretary of Health and Human Services shall— #####
(A)not later than 1 year after the date of enactment of this Act, submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives a report on activities related to— ######
(i)newborn screening; and ######
(ii)screening children who have or are at risk for heritable disorders; and #####
(B)not less than every 2 years, submit to such committees an updated version of such report. ####
(2)Contents The report submitted under this subsection shall contain a description of— #####
(A)the ongoing activities under sections 1109, 1110, and 1112 through 1115 of the Public Health Service Act; and #####
(B)the amounts expended on such activities.
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Sec. 11
REPORTS TO CONGRESS
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