191.1835. Collection and dissemination of information, system established — list of data points — reporting requirements, medical providers.

398 words·~2 min read·/mo/chapter-191/191-1835

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191.1835. Collection and dissemination of information, system established — list of data points — reporting requirements, medical providers. — 1. The medical university shall establish, with the advice of the advisory committee, a system for the collection and dissemination of information determining the incidence and prevalence of Parkinson's disease and parkinsonism.

(1)Parkinson's disease and parkinsonism shall be designated as diseases required to be reported to the registry. Beginning August 28, 2024, all cases of Parkinson's disease and parkinsonism diagnosed or treated in this state shall be reported to the registry.

(2)Notwithstanding the provisions of subdivision

(1)of this subsection to the contrary, the mere incidence of a patient with Parkinson's disease or parkinsonism shall be the sole required information for the registry for any patient who chooses not to participate as described in section 191.1825 . No further data shall be reported to the registry for patients who choose not to participate.

3. The medical university may create, review, and revise a list of data points required to be collected as part of the mandated reporting of Parkinson's disease and parkinsonism under this section. Any such list shall include, but not be limited to, necessary triggering diagnostic conditions consistent with the latest International Statistical Classification of Diseases and Related Health Problems and resulting case data on issues including, but not limited to, diagnosis, treatment, and survival.

4. At least ninety days before reporting to the registry is required under this section, the medical university shall publish on its website a notice about the mandatory reporting of Parkinson's disease and parkinsonism and may also provide such notice to professional associations representing physicians, nurse practitioners, and hospitals.

5. Beginning August 28, 2024, any hospital, facility, physician, surgeon, physician assistant, or nurse practitioner diagnosing or responsible for providing primary treatment to patients with Parkinson's disease or patients with parkinsonism shall report each case of Parkinson's disease and each case of parkinsonism to the registry in a format prescribed by the medical university.

6. The medical university shall be authorized to enter into data-sharing contracts with data-reporting entities and their associated electronic medical record system vendors to securely and confidentially receive information related to Parkinson's disease testing, diagnosis, and treatment.

7. The medical university may implement and administer this section through a bulletin or similar instruction to providers without the need for regulatory action.

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(L. 2023 H.B. 402)