Sec. 131-15. Grants; eligibility standards.

421 words·~2 min read·/il/chapter-410/act-460/131-15

A research copy — for the controlling text, always check the official state or federal source. Not legal advice.

(a)The Department shall do the following:

(1)(A) Develop application criteria and standards of eligibility for groups or

organizations who apply for funds under the program.

(B)Make available grants to groups and organizations who meet the eligibility standards

set by the Department. However:

(i)the highest priority for grants shall be accorded to established sickle cell

disease community-based organizations throughout Illinois; and

(ii)priority shall also be given to ensuring the establishment of sickle cell

disease centers in underserved areas that have a higher population of sickle cell disease patients.

(2)Determine the maximum amount available for each grant provided under subparagraph

(B)of paragraph (1).

(3)Determine policies for the expiration and renewal of grants provided under

subparagraph

(B)of paragraph (1).

(4)Require that all grant funds be used for the purpose of prevention, care, and

treatment of sickle cell disease or for educational programs concerning the disease. Grant funds shall be used for one or more of the following purposes:

(A)Assisting in the development and expansion of care for the treatment of

individuals with sickle cell disease, particularly for adults, including the following types of care:

(i)Self-administered care.

(ii)Preventive care.

(iii)Home care.

(iv)Other evidence-based medical procedures and techniques designed to provide

maximum control over sickling episodes typical of occurring to an individual with the disease.

(B)Increasing access to health care for individuals with sickle cell disease.

(C)Establishing additional sickle cell disease infusion centers.

(D)Increasing access to mental health resources and pain management therapies for

individuals with sickle cell disease.

(E)Providing counseling to any individual, at no cost, concerning sickle cell

disease and sickle cell trait, and the characteristics, symptoms, and treatment of the disease.

(i)The counseling described in this subparagraph

(E)may consist of any of the

following:

(I)Genetic counseling for an individual who tests positive for the sickle

cell trait.

(II)Psychosocial counseling for an individual who tests positive for sickle

cell disease, including any of the following:

(aa)Social service counseling.

(bb)Psychological counseling.

(cc)Psychiatric counseling.

(5)Develop a sickle cell disease educational outreach program that includes the

dissemination of educational materials to the following concerning sickle cell disease and sickle cell trait:

(A)Medical residents.

(B)Immigrants.

(C)Schools and universities.

(6)Adopt any rules necessary to implement the provisions of this Act.

(b)The Department may contract with an entity to implement the sickle cell disease educational outreach program described in paragraph

(5)of subsection (a).