Sec. 4. Education and dissemination of information on Long COVID
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The Secretary shall develop and disseminate to the public regularly updated information regarding Long COVID, in plain language and in a manner that is culturally and linguistically appropriate and easily accessible to people with disabilities and people with limited English proficiency, including information on— the awareness, incidence, and short- and long-term health effects associated with COVID–19 infection, including Long COVID associated disability; illnesses related and often comorbid with Long COVID, which may include— myalgic encephalomyelitis/chronic fatigue syndrome; fibromyalgia; postural orthostatic tachycardia syndrome and other forms of dysautonomia; autoimmune diseases associated with viral triggers; connective tissue diseases exacerbated or triggered by infections; mast cell activation syndrome; related conditions and illnesses that may affect adults, young adults, or children; and other conditions, as the Secretary determines appropriate; the availability, as medically appropriate, of treatment options for Long COVID and related conditions overlapping with Long COVID identified under paragraph (2); and strategies for reducing the likelihood of developing Long COVID.
The Secretary, in consultation with representatives from impacted communities and health care providers who treat such communities or individuals, shall develop and disseminate to health care providers, including by developing or improving continuing medical education programs that advance the education of such providers, information on Long COVID, recommended assessment tools, including how to assess patients’ functional capacity to support applications for disability benefits, and management of Long COVID and related conditions for the purpose of ensuring that health care providers remain informed about current information on Long COVID and related conditions, including information on— Long COVID symptoms such as cognitive, neurological, psychiatric, gastrointestinal, respiratory, and cardiovascular symptoms; myalgic encephalomyelitis/chronic fatigue syndrome and fibromyalgia; postural orthostatic tachycardia syndrome and other forms of dysautonomia; autoimmune diseases associated with viral triggers; connective tissue diseases exacerbated or triggered by infections; mast cell activation syndrome; related conditions and illnesses that may affect adults, young adults, or children; and other conditions as the Secretary determines appropriate.
In developing and disseminating information in subsections
(a)and (b), the Secretary shall ensure that— guidance on Long COVID diagnostics, treatments, and care include demographic factors such as age, gender, geographic location, disability, occupation, race and ethnicity, and other factors identified by the Secretary to promote health equity; and individuals with Long COVID and related conditions, and entities representing such individuals, are empowered to participate in protocol development and outreach and education strategies. The Secretary shall disseminate, in plain language and in a manner that is culturally and linguistically appropriate and easily accessible to people with disabilities and individuals with limited English proficiency, information under subsections
(a)and (b), directly or through arrangements with intra-agency initiatives, nonprofit organizations, consumer groups, Federally qualified health centers, institutions of higher learning (as defined in section 101 of the Higher Education Act of 1965 ( 20 U.S.C. 1001 )), local educational agencies or State educational agencies (as defined in section 8101 of the Elementary and Secondary Education Act of 1965 ( 20 U.S.C. 7801 )), or Federal, State, Tribal, or local public private partnerships. To carry out this section, there is authorized to be appropriated $30,000,000 for each of fiscal years 2024 through 2026, which shall remain available until expended.
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