Sec. 3. Programs relating to autism

1,352 words·~6 min read·/bill/118/hr/7213/rh/section-3

A research copy — for the controlling text, always check the official state or federal source. Not legal advice.

Section 399AA of the Public Health Service Act ( 42 U.S.C. 280i ) is amended— in subsection (b)(1), by striking and causes and inserting causes, and life course ; and in subsection (e), by striking 2024 and inserting 2029 . Section 399BB of the Public Health Service Act ( 42 U.S.C. 280i–1 ) is amended— in subsection (a)(2), by striking subsequent interventions and inserting subsequent interventions and services ; in subsection (b)(1), by striking culturally competent information and inserting culturally and linguistically responsive information ; in subsection (b)(2)— by striking promote research and inserting promote research, which may include community-based participatory research, ; and by striking screening tools each place it appears and inserting screening and diagnostic tools ; in subsection (b)(3), by striking at higher risk and inserting at increased likelihood ; in subsection (b)(4), by inserting , which may include such individuals utilizing parents and guardians trained to provide interventions, services, and supports before the semicolon at the end; in subsection (c)(1), by striking culturally competent information and inserting culturally and linguistically responsive information ; in subsection (c)(2)(A)(ii)— by striking advocates, and inserting advocates, self-advocates, ; and by striking culturally competent information and inserting culturally and linguistically responsive information ; by amending paragraph

(1)of subsection

(e)to read as follows: The Secretary, in coordination with activities conducted under title V of the Social Security Act, shall, subject to the availability of appropriations, strengthen the capacity of existing training programs and expand existing interdisciplinary training opportunities or opportunities to increase the number of programs that address the health and well-being of individuals who have or are at increased likelihood for autism spectrum disorder and other neurodevelopmental disabilities across their lifespan. Activities under the preceding sentence shall include— awarding competitive grants or cooperative agreements to public or nonprofit agencies, including institutions of higher education, to expand existing or develop new maternal and child health interdisciplinary leadership education in neurodevelopmental and related disabilities programs (similar to the programs developed under section 501(a)(2) of the Social Security Act) in States that do not have such a program; ensuring that trainees under such training programs— receive an appropriate balance of academic, clinical, and community opportunities; are culturally and linguistically responsive; are from various backgrounds; demonstrate a capacity to evaluate, diagnose or rule out, develop, and provide evidence-based interventions and programs to individuals with autism spectrum disorder and other developmental disabilities across their lifespan; and demonstrate an ability to use a person- and family-centered approach, which may include collaborating with research centers or networks to provide training for providers of respite care (as defined in section 2901); ensuring that program sites provide culturally and linguistically responsive services; and encouraging training programs to partner with appropriate entities to build community capacity. ; in subsection (e)(2), by adding at the end the following new subparagraph: Not later than 2 years after September 30, 2024, the Comptroller General of the United States shall prepare and submit to the Committee on Energy and Commerce of the House of Representatives and the Committee on Health, Education, Labor, and Pensions of the Senate a report examining how to increase the number of developmental-behavioral pediatricians, including through the developmental behavioral pediatrician training program. ; in subsection (f)— by striking promote research and inserting promote research, including community-based participatory research, ; by striking physical and behavioral health of individuals and inserting physical and behavioral health, and communication needs, of individuals ; and by striking disseminate information related to such research and guidelines and inserting disseminate information relating to such research and guidelines to improve the quality of life and long-term outcomes ; and in subsection (g), by striking 2024 and inserting 2029 . Section 399CC of the Public Health Service Act ( 42 U.S.C. 280i–2 ) is amended— in subsection (b)— in paragraph (2), by striking develop a summary and inserting develop and update a summary ; in paragraphs

(3)and (4), by striking make recommendations and inserting make and update recommendations ; and by striking paragraphs

(5)and

(6)and inserting the following: develop and update a strategic plan for the conduct of, and support for, autism spectrum disorder research, including as practicable for services and supports, for individuals with an autism spectrum disorder across the lifespan of such individuals and the families of such individuals, and across the entire population of individuals with autism spectrum disorder, including the full range of cognitive, communicative, behavioral, and adaptive functioning, as well as co-occurring conditions and needs for support and services, including care necessary for physical safety, which such plan shall include proposed budgetary requirements and recommendations to ensure that autism spectrum disorder research, and services and support activities to the extent practicable, of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative; and submit to the Congress and President— an annual update on the summary of advances described in paragraph (2); and each update to the strategic plan described in paragraph (5), including any steps that have already been taken to implement the recommendations in such updated strategic plan and progress made in achieving the goals outlined in such updated strategic plan. ; and in subsection (f), by striking 2024 and inserting 2029 . Section 399DD of the Public Health Service Act ( 42 U.S.C. 280i–3 ) is amended— by striking Autism CARES Act of 2019 each place it appears and inserting ; Autism CARES Act of 2024 in subsection (a), by amending paragraph

(1)to read as follows: Not later than 4 years after September 30, 2024, the Secretary, in consultation and coordination with other Federal departments and agencies that serve individuals with autism spectrum disorder, shall prepare and submit to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives, and make publicly available, including through posting on the internet website of the Department of Health and Human Services, a progress report on activities related to autism spectrum disorder and other developmental disabilities. Such report shall include activities and research related to the entire population of individuals with autism spectrum disorder, including the full range of cognitive, communicative, behavioral, and adaptive functioning, as well as co-occurring conditions and needs for support and services, including care necessary for physical safety. ; and by adding at the end the following: Not later than 2 years after the date of enactment of the Autism CARES Act of 2024 , the Secretary, in coordination with other Federal departments and agencies that serve individuals with autism spectrum disorder, shall prepare and submit to the Committee on Energy and Commerce of the House of Representatives and the Committee on Health, Education, Labor, and Pensions of the Senate an update to the report required pursuant to section 6 of the Autism Cares Act of 2014 ( Public Law 113–157 ) concerning young adults with autism spectrum disorder and the challenges related to the transition from existing school-based services to those services available during adulthood. For each fiscal year through fiscal year 2029, the Director of the National Institutes of Health, in coordination with other relevant agencies, as appropriate, shall prepare and submit, directly to the President for review and transmittal to Congress, after reasonable opportunity for comment, but without change, by the Secretary and the Interagency Autism Coordinating Committee established under section 399CC(a), an annual budget estimate for carrying out the strategic plan developed and updated under section 399CC(b)(5). . Section 399EE of the Public Health Service Act ( 42 U.S.C. 280i–4 ) is amended— in subsection (a), by striking $23,100,000 for each of fiscal years 2020 through 2024 and inserting $28,100,000 for each of fiscal years 2025 through 2029 ; in subsection (b), by striking $50,599,000 for each of fiscal years 2020 through 2024 and inserting $56,344,000 for each of fiscal years 2025 through 2029 ; and in subsection (c), by striking there are authorized to be appropriated $296,000,000 for each of fiscal years 2020 through 2024 and inserting there is authorized to be appropriated $341,000,000 for each of fiscal years 2025 through 2029 .

Connectionstraces to 2

Traces to 2 documents

U.S. Code