Sec. 502. Findings and purpose
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Congress finds the following: According to 2017 data from National Program of Cancer Registries of the Centers for Disease Control and Prevention, approximately 26,500 cancer cases among veterans were not reported to State cancer registries funded through such Program. Established by Congress in 1992 through the Cancer Registries Amendment Act ( Public Law 102–515 ), the National Program of Cancer Registries under section 399B of the Public Health Service Act ( 42 U.S.C. 280e ) collects data on cancer occurrence (including the type, extent, and location of the cancer), the type of initial treatment, and outcomes.
The Centers for Disease Control and Prevention support central cancer registries in 46 States, the District of Columbia, Puerto Rico, certain territories of the United States in the Pacific Islands, and the United States Virgin Islands. The data obtained by registries described in paragraph
(3)combined with data from the Surveillance, Epidemiology, and End Results Program of the National Cancer Institute and mortality data from National Center for Health Statistics of the Centers for Disease Control and Prevention comprise the official United States Cancer Statistics. The United States Cancer Statistics reflect all newly diagnosed cancer cases and cancer deaths for the entire population of the United States, except for unreported veterans. Federal law requires the Centers for Disease Control and Prevention and the National Cancer Institute to collect cancer data for all newly diagnosed cancer cases, but that currently cannot be achieved due to frequent lack of reporting by medical facilities of the Department of Veterans Affairs. Releasing all data from medical facilities of the Department to State cancer registries will provide more complete data for health care providers, public health officials, and researchers to— measure cancer occurrence and trends at the local and national level; inform and prioritize cancer educational and screening programs; evaluate efficacy of prevention efforts and treatment; determine survival rates; conduct research on the etiology, diagnosis, and treatment of cancer; ensure quality and equity in cancer care; and plan for health services. Capturing cancer data from medical facilities of the Department in State cancer registries and the United States Cancer Statistics can benefit veterans by— improving the ability to identify cancer-related disparities in the veteran community; improving understanding of the cancer-related needs of veterans, which can be incorporated into State Comprehensive Cancer Control planning for screening and treatment programs funded by the Centers for Disease Control and Prevention; and increasing opportunities for veterans with cancer to be included in more clinical trials and cancer-related research and analysis being done outside of the health care system of the Department. It is the purpose of this Act to improve care for veterans by ensuring all data on veterans diagnosed with cancer are captured by the national cancer registry programs supported by the National Program of Cancer Registries of the Centers for Disease Control and Prevention and the Surveillance, Epidemiology, and End Results Program of the National Cancer Institute.
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- Pub. L. 102-515
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