Sec. 4. COVID–19 data collection and disclosure
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The Secretary of Health and Human Services (referred to in this Act as the Secretary ), acting through the Director of the Centers for Disease Control and Prevention and the Administrator of the Centers for Medicare & Medicaid Services, shall make publicly available on the website of the Centers for Disease Control and Prevention data collected across all surveillance systems relating to COVID–19, disaggregated by race, ethnicity, sex, age, primary language, socioeconomic status, disability status, and county, including the following:
Data related to all COVID–19 testing, including the number of individuals tested and the number of tests that were positive. Data related to treatment for COVID–19, including hospitalizations and intensive care unit admissions. Data related to COVID–19 outcomes, including total fatalities and case fatality rates (expressed as the proportion of individuals who were infected with COVID–19 and died from the virus). Data related to COVID–19 vaccinations, including— the number of vaccines administered; the number of vaccinations offered, accepted, and refused; the most common reasons for refusal; and the percentage of vaccine doses allocated and administered to each priority group.
To the extent practicable, data collection under this section shall follow standards developed by the Department of Health and Human Services Office of Minority Health and be collected, analyzed, and reported in accordance with the standards promulgated by the Assistant Secretary for Planning and Evaluation under title XXXI of the Public Health Service Act ( 42 U.S.C. 300kk et seq.). The data made available under this section shall be updated on a daily basis throughout the public health emergency.
In publishing data under this section, the Secretary shall take all necessary steps to protect the privacy of individuals whose information is included in such data, including— complying with privacy protections provided under the regulations promulgated under section 264(c) of the Health Insurance Portability and Accountability Act of 1996; and protections from all inappropriate internal use by an entity that collects, stores, or receives the data, including use of such data in determinations of eligibility (or continued eligibility) in health plans, and from inappropriate uses.
The Indian Health Service shall consult with Indian Tribes and confer with urban Indian organizations on data collection and reporting for purposes of this Act. Not later than 60 days after the date on which the Secretary certifies that the public health emergency related to COVID–19 has ended, the Secretary shall make publicly available a summary of the final statistics related to COVID–19. Not later than 60 days after the date on which the Secretary certifies that the public health emergency related to COVID–19 has ended, the Department of Health and Human Services shall compile and submit to the Committee on Health, Education, Labor, and Pensions and the Committee on Finance of the Senate and the Committee on Energy and Commerce and the Committee on Ways and Means of the House of Representatives a preliminary report— describing the testing, hospitalization, mortality rates, vaccination rates, and preferred language of patients associated with COVID–19 by race and ethnicity; and proposing evidenced-based response strategies to safeguard the health of these communities in future pandemics.
Indian Tribes may opt out of any of the requirements of this section.
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Sec. 4
COVID–19 data collection and disclosure
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