Sec. 5. Review of maternal health data collection processes and quality measures
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The Secretary of Health and Human Services, acting through the Administrator for Centers for Medicare & Medicaid Serves and the Director of the Agency for Healthcare Research and Quality, shall consult with relevant stakeholders— to review existing maternal health data collection processes and quality measures; and make recommendations to improve such processes and measures, including topics described in subsection (c). In carrying out this section, the Secretary shall consult with a diverse group of maternal health stakeholders, which may include— pregnant and postpartum individuals and their family members, and nonprofit organizations representing such individuals, with a particular focus on patients from racial and ethnic minority groups; community-based organizations that provide support for pregnant and postpartum individuals, with a particular focus on patients from racial and ethnic minority groups; membership organizations for maternity care providers; organizations representing perinatal health workers; organizations that focus on maternal mental or behavioral health; organizations that focus on intimate partner violence; institutions of higher education, with a particular focus on minority-serving institutions; licensed and accredited hospitals, birth centers, midwifery practices, or other medical practices that provide maternal health care services to pregnant and postpartum patients; relevant State and local public agencies, including State maternal mortality review committees; and the National Quality Forum, or such other standard-setting organizations specified by the Secretary.
The review of maternal health data collection processes and recommendations to improve such processes and measures required under subsection
(a)shall assess all available relevant information, including information from State-level sources, and shall consider at least the following: Current State and Tribal practices for maternal health, maternal mortality, and severe maternal morbidity data collection and dissemination, including consideration of— the timeliness of processes for amending a death certificate when new information pertaining to the death becomes available to reflect whether the death was a pregnancy-related death; relevant data collected with electronic health records, including data on race, ethnicity, socioeconomic status, insurance type, and other relevant demographic information; maternal health data collected and publicly reported by hospitals, health systems, midwifery practices, and birth centers; the barriers preventing States from correlating maternal outcome data with race and ethnicity data; processes for determining the cause of a pregnancy-associated death in States that do not have a maternal mortality review committee; whether maternal mortality review committees include multidisciplinary and diverse membership (as described in section 317K(d)(1)(A) of the Public Health Service Act ( 42 U.S.C. 247b–12(d)(1)(A) ); whether members of maternal mortality review committees participate in trainings on bias, racism, or discrimination, and the quality of such trainings; the extent to which States have implemented systematic processes of listening to the stories of pregnant and postpartum individuals and their family members, with a particular focus on pregnant and postpartum individuals from racial and ethnic minority groups (as such term is defined in section 1707(g)(1) of the Public Health Service Act ( 42 U.S.C. 300u–6(g)(1) )) and their family members, to fully understand the causes of, and inform potential solutions to, the maternal mortality and severe maternal morbidity crisis within their respective States; the extent to which maternal mortality review committees are considering social determinants of maternal health when examining the causes of pregnancy-associated and pregnancy-related deaths; the extent to which maternal mortality review committees are making actionable recommendations based on their reviews of adverse maternal health outcomes and the extent to which such recommendations are being implemented by appropriate stakeholders; the legal and administrative barriers preventing the collection, collation, and dissemination of State maternity care data; the effectiveness of data collection and reporting processes in separating pregnancy-associated deaths from pregnancy-related deaths; the current Federal, State, local, and Tribal funding support for the activities referred to in subparagraphs
(A)through (L). Whether the funding support referred to in paragraph (1)(M) is adequate for States to carry out optimal data collection and dissemination processes with respect to maternal health, maternal mortality, and severe maternal morbidity. Current quality measures for maternity care, including prenatal measures, labor and delivery measures, and postpartum measures, including topics such as— effective quality measures for maternity care used by hospitals, health systems, midwifery practices, birth centers, health plans, and other relevant entities; the sufficiency of current outcome measures used to evaluate maternity care for driving improved care, experiences, and outcomes in maternity care payment and delivery system models; maternal health quality measures that other countries effectively use; validated measures that have been used for research purposes that could be tested, refined, and submitted for national endorsement; barriers preventing maternity care providers and insurers from implementing quality measures that are aligned with best practices; the frequency with which maternity care quality measures are reviewed and revised; the strengths and weaknesses of the Prenatal and Postpartum Care measures of the Health Plan Employer Data and Information Set measures established by the National Committee for Quality Assurance; the strengths and weaknesses of maternity care quality measures under the Medicaid program under title XIX of the Social Security Act ( 42 U.S.C. 1396 et seq.) and the Children’s Health Insurance Program under title XXI of such Act ( 42 U.S.C. 1397 et seq.), including the extent to which States voluntarily report relevant measures; the extent to which maternity care quality measures are informed by patient experiences that include measures of patient-reported experience of care; the current processes for collecting stratified data on the race and ethnicity of pregnant and postpartum individuals in hospitals, health systems, midwifery practices, and birth centers, and for incorporating such racially and ethnically stratified data in maternity care quality measures; the extent to which maternity care quality measures account for the unique experiences of pregnant and postpartum individuals from racial and ethnic minority groups (as such term is defined in section 1707(g)(1) of the Public Health Service Act ( 42 U.S.C. 300u–6(g)(1) )); and the extent to which hospitals, health systems, midwifery practices, and birth centers are implementing existing maternity care quality measures. Recommendations on authorizing additional funds and providing additional technical assistance to improve maternal mortality review committees and State and Tribal maternal health data collection and reporting processes. Recommendations for new authorities that may be granted to maternal mortality review committees to be able to— access records from other Federal and State agencies and departments that may be necessary to identify causes of pregnancy-associated and pregnancy-related deaths that are unique to pregnant and postpartum individuals from specific populations, such as veterans and individuals who are incarcerated; and work with relevant experts who are not members of the maternal mortality review committee to assist in the review of pregnancy-associated deaths of pregnant and postpartum individuals from specific populations, such as veterans and individuals who are incarcerated. Recommendations to improve and standardize current quality measures for maternity care, with a particular focus on racial and ethnic disparities in maternal health outcomes. Recommendations to improve the coordination by the Department of Health and Human Services of the efforts undertaken by the agencies and organizations within the Department related to maternal health data and quality measures. Not later than 1 year after the date of enactment of this Act, the Secretary shall submit to Congress and make publicly available a report on the results of the review of maternal health data collection processes and quality measures and recommendations to improve such processes and measures required under subsection (a). In this section: The term maternal mortality review committee means a maternal mortality review committee duly authorized by a State and receiving funding under section 317K(a)(2)(D) of the Public Health Service Act ( 42 U.S.C. 247b–12(a)(2)(D) ). The term pregnancy-associated , with respect to a death, means a death of a pregnant or postpartum individual, by any cause, that occurs during, or within 1 year following, the individual’s pregnancy, regardless of the outcome, duration, or site of the pregnancy. The term pregnancy-related , with respect to a death, means a death of a pregnant or postpartum individual that occurs during, or within 1 year following, the individual’s pregnancy, from a pregnancy complication, a chain of events initiated by pregnancy, or the aggravation of an unrelated condition by the physiologic effects of pregnancy. There are authorized to be appropriated such sums as may be necessary to carry out this section for fiscal years 2022 through 2025.
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- 42 USC 247b–12(d)(1)(A)
- 42 USC 300u–6(g)(1)
- 42 USC 247b–12(a)(2)(D)
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Sec. 5
Review of maternal health data collection processes and quality measures
Cite42 USC 247b–12(d)(1)(A)
Cite42 USC 300u–6(g)(1)
Cite42 USC 247b–12(a)(2)(D)
Cites 5Cited by 0 across 0 sources