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Code · BILL · 117th Congress · S. 1397 (Introduced in Senate) — To amend the Public Health Service Act with respect to the collection and availability of health data with respect to... · Sec. 3

Sec. 3. Improving health statistics reporting with respect to Indian Tribes

947 words·~4 min read·/bill/117/s/1397/is/section-3

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Section 306(d) of the Public Health Service Act ( 42 U.S.C. 242k(d) ) is amended by inserting , Indian Tribes, Tribal organizations, and epidemiology centers after jurisdictions . Section 306(e)(3) of the Public Health Service Act ( 42 U.S.C. 242k(e)(3) ) is amended by inserting , Indian Tribes, Tribal organizations, and epidemiology centers after health agencies . Section 306(f) of the Public Health Service Act ( 42 U.S.C. 242k(f) ) is amended— by inserting , the Indian Health Service, after Commerce and Labor ; by inserting , Indian Tribes, Tribal organizations, and epidemiology centers after State and local health departments and agencies ; and by striking he shall and inserting the Secretary shall .
Section 306(h)(1) of the Public Health Service Act ( 42 U.S.C. 242k(h)(1) ) is amended— by striking in his discretion and inserting in the discretion of the Secretary ; and by striking Hispanics, Asian Americans, and Pacific Islanders and inserting American Indians and Alaska Natives, Hispanics, Asians, and Native Hawaiian and other Pacific Islanders . Section 306(k) of the Public Health Service Act ( 42 U.S.C. 242k(k) ) is amended— in paragraph (3), by striking , not later than 60 days after the date of the enactment of the Health Insurance Portability and Accountability Act of 1996, each place it appears; and in paragraph (7), by striking Not later than 1 year after the date of the enactment of the Health Insurance Portability and Accountability Act of 1996, and annually thereafter, the Committee shall and inserting The Committee shall, on a biennial basis, .
Section 306(m)(4) of the Public Health Service Act ( 42 U.S.C. 242k(m)(4) ) is amended— in subparagraph (A)— by striking Subject to subparagraph (B), the and inserting The ; and by striking and major Hispanic subpopulation groups and American Indians and inserting , major Hispanic subgroups, and American Indians and Alaska Natives ; and by amending subparagraph
(B)to read as follows: In carrying out subparagraph (A), with respect to American Indians and Alaska Natives, the Secretary shall— in consultation with Indian Tribes, Tribal organizations, the Tribal Technical Advisory Group of the Centers for Medicare & Medicaid Services maintained under section 5006(e) of the American Recovery and Reinvestment Act of 2009, and the Tribal Advisory Committee established by the Centers for Disease Control and Prevention, and in coordination with epidemiology centers, develop guidance for State and local health agencies to improve the quality and accuracy of data with respect to the birth and death records of American Indians and Alaska Natives; confer with urban Indian organizations to develop guidance for State and local health agencies to improve the quality and accuracy of data with respect to the birth and death records of American Indians and Alaska Natives; enter into cooperative agreements with Indian Tribes, Tribal organizations, Urban Indian organizations, and epidemiology centers to analyze and address misclassification and undersampling of American Indians and Alaska Natives in data systems at the Federal, State, and local levels, with respect to— birth and death records; and Federal, State, and local health care and public health surveillance systems, including with respect to chronic and infectious diseases, unintentional injuries, environmental health, child and adolescent health, maternal health and mortality, foodborne and waterborne illness, reproductive health, and any other notifiable disease or condition; adopt, based on local, statewide, Tribal, and national best practices, uniform standards for the collection of health data on race and ethnicity; encourage States to enter into data sharing agreements with Indian Tribes and epidemiology centers to improve the quality and accuracy of public health data regarding American Indians and Alaska natives, including by addressing misclassification and undersampling of American Indians and Alaska Natives in State and local public health data systems, including with respect to vital statistics, chronic and infectious diseases, unintentional injuries, environmental health, child and adolescent health, maternal health and mortality, foodborne and waterborne illness, reproductive health, and any other notifiable disease or condition; encourage States to adopt, based on local, statewide, Tribal, and national best practices, uniform standards for the collection of health data on race and ethnicity; and 180 days after the date of enactment of the Tribal Health Data Improvement Act of 2021 and biennially thereafter, issue a report on— which States have data sharing agreements with Indian Tribes, Tribal Organizations, urban Indian organizations, or epidemiology centers to improve the quality and accuracy of health data, listed by data system name; and actions taken by the Director of the Centers for Disease Control and Prevention to encourage States to enter into data sharing agreements with Indian Tribes, Tribal Organizations, urban Indian organizations, and epidemiology centers to improve the quality and accuracy of health data. . Section 306 of the Public Health Service Act ( 42 U.S.C. 242k ) is amended— by redesignating subsection
(n)as subsection (o); and by inserting after subsection
(m)the following: In this section: The term epidemiology center means an epidemiology center established under section 214 of the Indian Health Care Improvement Act, including any epidemiology center serving Indian Tribes regionally or serving urban Indian organizations nationally that is receiving funding from the Indian Health Service. The terms Indian Tribe and Tribal organization have the meanings given to the terms Indian tribe and tribal organization , respectively, in section 4 of the Indian Self-Determination and Education Assistance Act. The term Urban Indian organization has the meaning given to that term in section 4 of the Indian Health Care Improvement Act. . Section 306(o) of the Public Health Service Act, as redesignated by subsection (g), is amended to read as follows: To carry out this section, there is authorized to be appropriated $185,000,000 for each of the fiscal years 2021 through 2025. .
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Sec. 3
Improving health statistics reporting with respect to Indian Tribes
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