Sec. 103. Pandemic preparedness rare disease support program
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Subtitle B of title XXVIII of the Public Health Service Act ( 42 U.S.C. 300hh–10 et seq. ) is amended by inserting after section 2815 of such Act the following: The Secretary, acting through the Administrator of the Health Resources and Services Administration and in collaboration with the Director of the Centers for Disease Control and Prevention, shall award grants to eligible organizations to develop a pandemic preparedness plan regarding— the challenges faced by patients and the family caregivers of such patients served by the respective eligible organizations during the COVID–19 pandemic; potential challenges for the respective eligible organizations during future pandemics and other public health emergencies; how the respective eligible organizations plan to overcome the challenges described in paragraphs
(1)and (2), including how the respective organizations plan to support patients, their families, and health care providers to overcome such challenges; and efforts to partner with local, State, and Federal governments to promote a coordinated response to future pandemics and other public health emergencies. In awarding grants under this section, the Secretary shall give priority to eligible organizations that are rare disease or condition organizations. In this section: The term eligible organization means an organization that— is described in section 501(c) of the Internal Revenue Code of 1986 and exempt from tax under section 501(a) of such Code; and provides support and other resources to patients and their families for accessing and paying for medical care. The term public health emergency means a public health emergency declared under section 319. The term rare disease or condition has the meaning given to such term in section 526(a) of the Federal Food, Drug, and Cosmetic Act. There is authorized to be appropriated to carry out this section $25,000,000 for each of fiscal years 2022 through 2024. .
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- 42 USC 300hh–10
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Sec. 103
Pandemic preparedness rare disease support program
Cite42 USC 300hh–10
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