Sec. 101. Further understanding the implications of long COVID
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The Secretary of Health and Human Services shall— conduct a large national survey of patients who self-identify as having long COVID to assess sources of health coverage, long-term care coverage, and disability coverage for long COVID and related symptoms; and not later than 6 months after the date of the enactment of this Act, complete such survey and submit a report on the results of such survey to the Committees on Energy and Commerce, Ways and Means, and Education and Labor of the House of Representatives and the Committees on Health, Education, Labor, and Pensions and Finance of the Senate.
The Secretary of Health and Human Services shall— convene a series of not less than four national meetings, that may be virtual, to serve as the basis of an ongoing long COVID learning collaborative with individuals and organizations representing key sectors of the health care community; and invite to participate in such meetings individuals who represent the views of health plan representatives, health care providers (including hospitals, physicians, and nurses), medical and scientific researchers, patient and consumer advocates, data scientists, health care service providers, providers of workers compensation, employers, and developers of diagnostic and therapeutic products, including clinical laboratories.
The Secretary shall continue to convene national meetings under paragraph
(1)for— not less than 2 years after the date of the enactment of this Act; and each fiscal year thereafter, unless the Secretary determines that the public health and medical knowledge with respect to long COVID has sufficiently advanced to ensure widespread understanding of the characteristics of long COVID, including— the etiology, progression, similarity to other conditions, and duration of long COVID; and conditions that interact with long COVID. Beginning not later than 180 days after the date of the enactment of this Act, the Director of the National Institutes of Health shall award grants to hospitals for children, pediatric researchers, academic medical centers, and other appropriate organizations to research the long-term effects and treatment of COVID–19 in children, including long COVID. Of the amounts made available for research and clinical trials related to long-term studies of COVID–19 under the heading National Institutes of Health—Office of the Director of title III of the Consolidated Appropriations Act, 2021 ( Public Law 116–260 ), there are authorized to be appropriated such sums as may be necessary to carry out this subsection. Not later than 90 days after the date of the enactment of this Act, the Secretary of Health and Human Services shall seek to enter into an arrangement with the National Academy of Medicine under which the Academy conducts a study to evaluate disparities in racial and ethnic minority groups with respect to diagnosis of, severity of symptoms, access to care, and treatment for long COVID. The study under paragraph
(1)shall— with respect to individuals who are Black, Hispanic, American Indian, Alaska Native, or who belong to other racial and ethnic populations— evaluate the prevalence of long COVID; evaluate the rates of hospitalization and death from COVID–19; and evaluate and identify factors that increase the risk of severity of long COVID; and include recommendations to identify and address the disparities described in paragraph (1), including the causes of such disparities. There is authorized to be appropriated to carry out this subsection $5,000,000 for fiscal year 2022, to remain available until expended. The Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention, shall develop and disseminate to the public information regarding long COVID, including information on— the awareness, incidence, and common symptoms of long COVID; and the availability, as medically appropriate, of treatment options for long COVID. The Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention, shall in consultation with communities of individuals diagnosed with long COVID, develop and disseminate to health care providers information on long COVID for the purpose of ensuring that such providers remain informed about current information on long COVID. The Secretary of Health and Human Services may disseminate information under paragraphs
(1)and
(2)directly or through arrangements with intra-agency initiatives, nonprofit organizations, consumer groups, institutions of higher learning (as defined in section 101 of the Higher Education Act of 1965 ( 20 U.S.C. 1001 )), or Federal, State, or local public private partnerships. There is authorized to be appropriated to carry out this section $30,000,000 for fiscal year 2022, which shall remain available until expended.
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