Sec. 4. National Advisory Council on FSAD
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Part O of title III of the Public Health Service Act ( 42 U.S.C. 280f et seq. ), as amended by section 2, is further amended by inserting after section 339H the following: The Secretary shall establish an advisory council to be known as the National Advisory Council on FASD (referred to in this section as the Council ) to foster coordination and cooperation among all Federal and non-Federal members and their constituencies that conduct or support FASD and other conditions related to prenatal substance exposure research, programs, and surveillance, and otherwise meet the general needs of populations actually or potentially impacted by FASD and other conditions related to prenatal substance exposure.
The Council shall be composed of 23 members as described in paragraphs
(1)and (2). Members of the Council shall include representatives of the following Federal agencies: The National Institute on Alcohol Abuse and Alcoholism. The National Institute on Drug Abuse. The Centers for Disease Control and Prevention. The Health Resources and Services Administration. The Substance Abuse and Mental Health Services Agency. The Office of Special Education and Rehabilitative Services. The Office of Justice Programs. The Indian Health Service. The Interagency Coordinating Committee on Fetal Alcohol Spectrum Disorders. The Agency for Healthcare Research and Quality. Additional non-Federal public and private sector members of the Council shall be nominated by the Interagency Coordinating Committee on Fetal Alcohol Spectrum Disorders and appointed by the Secretary, and shall be staffed by the Office of the Assistant Secretary for Planning and Evaluation of the Department of Health and Human Service. Such members shall include— at least one individual with FASD or a parent or legal guardian of an individual with FASD; at least one individual or a parent or legal guardian of an individual with a condition related to prenatal substance exposure; at least one birth mother of an individual with FASD; at least one representative from the FASD Study Group of the Research Society on Alcoholism; at least one representative of the National Organization on Fetal Alcohol Syndrome; at least one representative of a leading statewide advocacy and service organization for individuals with FASD and their families; at least one representative of the FASD Center for Excellence established under section 399H–3; at least 2 representatives from State or Tribal advisory groups receiving an award under section 399H(d); and representatives with interest and expertise in FASD from the private sector of pediatricians, obstetricians and gynecologists, substance abuse and mental health care providers, family and juvenile court judges and justice and corrections programming and services, or special education and social work professionals. The members of the Council described in paragraph
(2)shall be appointed by the Secretary not later than 6 months after the date of enactment of the Advancing FASD Research, Services, and Prevention Act . The Council shall— advise Federal, State, Tribal and local programs and research concerning FASD and other conditions related to prenatal substance exposure, including programs and research concerning education and public awareness for relevant service providers, reducing the incidence of prenatal alcohol and other substance exposure in pregnancies, medical and mental diagnosis, interventions for women at-risk of giving birth with FASD and beneficial services and supports for individuals with FASD and their families; coordinate its efforts with the Interagency Committee on Fetal Alcohol Spectrum Disorders; develop a summary of advances in FASD research related to prevention, treatment, screening, diagnosis, and interventions; make recommendations for the FASD research program to the Director of the National Institute of Alcohol Abuse and Alcoholism; review the 2009 report of the National Task Force on FAS entitled, A Call to Action and other reports on FASD and the adverse impact of prenatal substance exposure; develop a summary of advances in practice and programs relevant to FASD prevention, treatment, early screening, diagnosis, and interventions; make recommendations on a national agenda to reduce the prevalence and the associated impact of FASD and other conditions related to prenatal substance exposure and improve the quality of life of individuals and families impacted by FASD or the adverse effects of prenatal substance exposure, including— proposed Federal budgetary requirements for FASD research and related services and support activities for individuals with FASD; recommendations to ensure that FASD research, and services and support activities to the extent practicable, of the Department of Health and Human Services and of other Federal departments and agencies, are not unnecessarily duplicative; identification of existing Federal programs that could be used to identify and assist individuals with FASD and other conditions related to substance exposed pregnancies; identification of gaps or barriers for individuals living with, or impacted by, FASD in accessing diagnostic, early intervention, and support services; identification of prevention strategies, including education campaigns and options, such as product warnings and other mechanisms to raise awareness of the risks associated with prenatal alcohol consumption; identification of current diagnostic methods and practices for the identification of FASD and identify gaps or barriers for achieving diagnostic capacity throughout the United States based on current estimated prevalence of FASD; recommendations for research or other measures to increase diagnostic capacity to meet the needs of the estimated number of individuals with FASD; identification and enhancement of culturally appropriate or best practice approaches and models of care to reduce the incidence of FASD; and identification and enhancement of best practice approaches and models of care to increase support and treat individuals with FASD, and to make recommendations for a broad model comprehensive community approach to the overall problem of prenatal alcohol and other harmful substance exposure. The Council shall submit to Congress and to the President— an update on the summary of advances described in paragraphs
(3)and
(6)of subsection (c), not later than 2 years after the date of enactment of the Advancing FASD Research, Services, and Prevention Act ; an update to the national agenda described in subsection (c)(7), including any progress made in achieving the objectives outlined in such agenda, not later than 4 years after the date of enactment of such Act; and a final report that provides a summary of advances described in paragraphs
(3)and
(6)of subsection (c), and an update to the national agenda described in subsection (c)(7), not later than September 30, 2027. There is authorized to be appropriated to carry out this section $2,000,000 for each of fiscal years 2022 through 2027. .
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Sec. 4
National Advisory Council on FSAD
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