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Code · BILL · 116th Congress · S. 5082 (Introduced in Senate) — To provide Federal support for COVID–19 testing, and for other purposes. · Sec. 8

Sec. 8. Demographic and geographic data collection

350 words·~2 min read·/bill/116/s/5082/is/section-8

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The Secretary, acting through the Director of the Centers for Disease Control and Prevention and in consultation with the Administrator of the Centers for Medicare & Medicaid Services and the Director of the Indian Health Service, shall make publicly available on the website of the Centers for Disease Control and Prevention data collected relating to COVID–19 testing from entities receiving Federal funding under this Act, including data disaggregated by race, ethnicity, sex (including sexual orientation and gender identity), age, primary language, socioeconomic status, disability status, pregnancy status, occupation, county, and zip code.
To the extent practicable, data collection under this section shall follow standards developed by the Office of Minority Health of the Department of Health and Human Services and the Centers for Disease Control and Prevention, and shall be collected, analyzed, and reported in accordance with the standards promulgated under section 3101 of the Public Health Service Act ( 42 U.S.C. 300kk ). The data made available under this section shall be updated on a weekly basis throughout the COVID–19 pandemic.
In publishing data under this section, the Secretary shall take all necessary steps to protect the privacy of individuals whose information is included in such data, including— complying with privacy protections provided under the regulations promulgated under section 264(c) of the Health Insurance Portability and Accountability Act of 1996 ( 42 U.S.C. 1320d–2 note) and State law; and protections from all inappropriate internal use by an entity that collects, stores, or receives the data, including use of such data in determinations of eligibility (or continued eligibility) in health plans, and from inappropriate uses.
Neither the Secretary, nor any other officer or employee of the Federal Government, or local government liaison, may use the information furnished under this legislation for any purpose other than the statistical and public health purposes for which such information is supplied, or make any publication whereby the data furnished by any particular establishment or individual under this Act can be identified, or permit anyone other than the sworn officers and employees of the Department of Health and Human Services to examine the individual reports.
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  • 42 USC 1320d–2
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Sec. 8
Demographic and geographic data collection
Cite42 USC 1320d–2
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