Sec. 5. National task force on health data protection
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The Secretary, in consultation with the Chairman of the Federal Trade Commission, the National Coordinator, and relevant stakeholders, shall establish a task force, to be known as the National Task Force on Health Data Protection (referred to in this section as the Task Force ). The Task Force shall— study the long-term effectiveness of de-identification methodologies for genetic data and biometric data; evaluate and provide input on the development of security standards, including encryption standards and transfer protocols, for consumer devices, services, applications, and software; evaluate and provide input with respect to addressing cybersecurity risks and security concerns related to consumer devices, services, applications, and software; evaluate and provide input with respect to the privacy concerns and protection standards related to consumer and employee health data; review and advise on the need, if any, to update the report issued by the Department of Health and Human Services to Congress entitled Examining Oversight of the Privacy & Security of Health Data Collected by Entities Not Regulated by HIPAA ; and provide advice and consultation in the establishment and dissemination of resources to educate and advise consumers about the basics of genetics and direct-to-consumer genetic testing, and the risks, benefits, and limitations of such testing.
The Secretary, in consultation with the Chairman of the Federal Trade Commission, the National Coordinator, and relevant stakeholders, shall appoint not more than 15 members to the Task Force. In appointing such members, the Secretary shall ensure that the total membership of the Task Force is an odd number and represents a diverse set of stakeholder perspectives. Not later than 1 year after the date of enactment of this Act, the Task Force shall prepare and submit to the Committee on Commerce, Science, and Transportation of the Senate, the Committee on Health, Education, Labor, and Pensions of the Senate, the Committee on Homeland Security and Governmental Affairs of the Senate, the Committee on Energy and Commerce of the House of Representatives, the Committee on Homeland Security of the House of Representatives, the Secretary, the Chairman of the Federal Trade Commission, and the Commissioner of Food and Drugs, a report on the findings of the Task Force.
There are authorized to be appropriated such sums as may be necessary to carry out this section. The Federal Advisory Committee Act (5 U.S.C. App.) shall apply to the Task Force. The Task Force shall terminate on the date that is 5 years after the date of the first meeting of the Task Force. Not later than the date that is one year prior to the termination of the Task Force under paragraph (1), the Secretary shall submit to Congress a recommendation on whether the Task Force should be extended.