Sec. 823. Assessment of use and misuse of de-identified health data
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Not later than 18 months after the date of enactment of this Act, the Secretary of Health and Human Services shall— enter into an agreement with the Office of the National Coordinator to conduct a study on the impact of digital health technology on medically underserved areas (as described in section 822(c) of the Health Equity and Accountability Act of 2020) in consultation with relevant stakeholders; and submit a report to Congress describing the results of such study, including any recommendations for legislative or administrative action.
The study described in subsection (a)(1) shall— examine the overall prevalence, and historical and existing practices and their respective prevalence, of use and misuse of de-identified protected health information, as it is defined in section 160.103, title 45, Code of Federal Regulations, to discriminate against or benefit medically underserved areas; identify best practices and tools to leverage the benefits and prevent misuse of de-identified protected health information to discriminate against medically underserved areas; examine the overall prevalence, and historical and existing practices and their respective prevalence, of use and misuse of de-identified personal health information other than protected health information, as it is defined in section 160.103, title 45, Code of Federal Regulations, to discriminate against or benefit medically underserved areas; and identify best practices and tools to leverage the benefits and prevent misuse of de-identified personal health information other than protected health information to discriminate against medically underserved areas.