Sec. 3. Interagency coordinating committee on fetal alcohol spectrum disorders

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Part O of title III of the Public Health Service Act ( 42 U.S.C. 280F et seq.), as amended by section 2(a), is further amended by inserting after section 399H the following: The Secretary, acting through the Director of the National Institute of Alcohol Abuse and Alcoholism, shall maintain the Interagency Coordinating Committee on Fetal Alcohol Spectrum Disorders (referred to in this section as the Committee ) with both Federal and non-Federal members and a chairperson appointed by the Director, to coordinate and recommend efforts within the Department of Health and Human Services and other relevant Federal departments and agencies concerning FASD.

In carrying out its duties under this section, the Committee shall— monitor FASD research and services and, to the extent practicable, services and support activities across all relevant Federal departments and agencies, including coordination of Federal activities with respect to FASD; develop a summary of advances in FASD research related to prevention, treatment, early screening, diagnosis, and interventions; make recommendations for the FASD research agenda to the Director of the National Institute of Alcohol Abuse and Alcoholism, as described in section 399H(b)(1)(A); review the 2009 report of the National Task Force on FAS entitled, A Call to Action , and other reports on FASD and make recommendations on a national strategic plan to reduce the prevalence and the associated impact of FASD and improve the quality of life for individuals living with FASD, which shall include— proposed Federal budgetary requirements for FASD research and related services and support activities for individuals with FASD; recommendations to ensure that FASD research, and services and support activities to the extent practicable, of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative; identification of gaps or barriers for individuals living with, or impacted by, FASD in accessing diagnostic, early intervention, and support services; identification of prevention strategies, including education campaigns and options, such as product warnings and other mechanisms to raise awareness of the risks associated with prenatal alcohol consumption; identification of best practice approaches to reduce the incidence of FASD; and identification of best practice approaches and models of care to increase support and treat individuals with FASD, and their families; and submit to Congress and the President— an update on the summary of advances described in paragraph (3), one year after the date of enactment of the Advancing FASD Research, Prevention, and Services Act ; an update to the national strategic plan described in paragraph (4), including any progress made in achieving the objectives outlined in such strategic plan, one year after the date of enactment of the Advancing FASD Research, Prevention, and Services Act ; and a final report that provides a summary of advances described in paragraph

(3)and an update to the national strategic plan described in paragraph (4), not later than September 30, 2025. The Committee shall be composed of representatives as described in paragraphs

(1)and (2). Members of the Committee shall include representatives of the following Federal agencies: The National Institute on Alcohol Abuse and Alcoholism. The Centers for Disease Control and Prevention. The Health Resources and Services Administration. Other agencies with responsibilities for FASD, substance use prevention and treatment, maternal health, child health and welfare, and rehabilitative services, which may include Federal agencies that interact with individuals with FASD in the educational and correctional systems. Additional non-Federal public and private sector members of the Committee shall be appointed by the Director of the National Institute on Alcohol Abuse and Alcoholism, including— one individual with FASD or a parent or legal guardian of an individual with FASD; one representative of the National Organization on Fetal Alcohol Syndrome and one representative of a leading statewide advocacy and service organization for individuals with FASD; one representative of the FASD Center of Excellence established under section 399H–2, and one representative of a State advisory group engaged in building a State FASD system pursuant to section 399H(d); and multiple individuals with expertise on FASD who will serve as representatives of private sector organizations that engage on FASD issues on behalf of pediatricians, obstetricians and gynecologists, mental health care providers, family court judges, juvenile judges and justice programming and services, and special education and social work professionals. There are authorized to be appropriated to carry out this section such sums as may be necessary for each of fiscal years 2020 through 2025. .

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42 USC 280F

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Sec. 3

Interagency coordinating committee on fetal alcohol spectrum disorders

Cite42 USC 280F

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