Sec. 5. National palliative care education and awareness campaign
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Part A of title IX of the Public Health Service Act ( 42 U.S.C. 299 et seq.) is amended by adding at the end the following new section: Under the authority under section 902(a) to disseminate information on health care and on systems for the delivery of such care, the Director shall provide for the planning and implementation of a national education and awareness campaign to inform patients, families, and health professionals about the benefits of palliative care throughout the continuum of care for patients with serious or life-threatening illness. The campaign under subsection
(a)shall include dissemination of the following: Information, resources, and communication materials about palliative care as an essential part of the continuum of quality care for patients and families facing serious or life-threatening illness (including cancer; heart, kidney, liver, lung, and infectious diseases; as well as neurodegenerative disease such as dementia, Parkinson’s disease, or amyotrophic lateral sclerosis). Specific information regarding the services provided to patients by professionals trained in hospice and palliative care, including pain and symptom management, support for shared decisionmaking, care coordination, psychosocial care, and spiritual care, explaining that such services may be provided starting at the point of diagnosis and alongside curative treatment and are intended to— provide patient-centered and family-centered support throughout the continuum of care for serious and life-threatening illness; anticipate, prevent, and treat physical, emotional, social, and spiritual suffering; optimize quality of life; and facilitate and support the goals and values of patients and families. Specific materials that explain the role of professionals trained in hospice and palliative care in providing team-based care (including pain and symptom management, support for shared decisionmaking, care coordination, psychosocial care, and spiritual care) for patients and families throughout the continuum of care for serious or life-threatening illness. Evidence-based research demonstrating the benefits of patient access to palliative care throughout the continuum of care for serious or life-threatening illness. Materials shall be developed that target specific populations, including patients with serious or life-threatening illness who are among medically underserved populations (as defined in section 330(b)(3)) and families of such patients or health professionals serving medically underserved populations. Such populations shall include pediatric patients, young adult and adolescent patients, racial and ethnic minority populations, and other priority populations specified by the Director. In addition to the information described in paragraph (1), such campaign may include dissemination of such other information as the Director determines to be relevant. The information and materials required to be disseminated under paragraph
(1)and any information disseminated under paragraph
(2)shall be presented in a variety of formats (such as posted online, in print, and through public service announcements). The information and materials required to be disseminated under paragraph
(1)and any information disseminated under paragraph
(2)shall be posted on the Internet websites of relevant Federal agencies and Departments, including the Agency for Healthcare Research and Quality, the Centers for Medicare & Medicaid Services, the Administration on Aging, the Centers for Disease Control and Prevention, and the Department of Veterans Affairs. The Director shall consult with appropriate professional societies, hospice and palliative care stakeholders, and relevant patient advocate organizations with respect to palliative care, psychosocial care, and complex chronic illness with respect to the following: The planning and implementation of the national palliative care education and awareness campaign under this section. The development of information to be disseminated under this section. A definition of the term serious or life-threatening illness for purposes of this section. .
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Sec. 5
National palliative care education and awareness campaign
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