Sec. 9. Grants for increasing public awareness and training
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The Secretary of Health and Human Services (referred to in this section as the Secretary ), in consultation with the Advance Care Planning Advisory Council (established in section 10), may award grants to public or private entities (including, as appropriate, States, political subdivisions of States, medical schools, nursing schools, health care systems, faith-based organizations, and religious educational institutions), or a consortium of any such entities, to develop online training modules, decision support tools, and instructional materials for individuals, family caregivers, and health care providers that include— with respect to healthy individuals, the importance of— identifying an individual who will make treatment decisions in the event of future cognitive incapacity; discussing values and goals relevant to serious injury or illness; and completing an advance directive that— appoints a surrogate; and documents goals and values and other information that should be considered in making treatment decisions; with respect to individuals with serious, chronic progressive, or advanced illness, the importance of— articulating goals of care; understanding prognosis and typical disease trajectory; evaluating treatment options in light of goals of care; developing a treatment plan; and documenting the treatment plan on advance directives, portable treatment orders, and other documentation forms used in the locality where the plan is to be executed; the role and effective use of State and other advance directive forms and portable treatment orders; the range of services for individuals facing serious, chronic progressive, or advanced illness, including advance care planning services, palliative care, and hospice care; and with respect to providers of advance care planning, advance illness care, hospice care, and palliative care in hospital, hospice, home, community, and long-term care settings, material to assist in— developing and implementing programs and initiatives to train and educate individuals; providing training and continuing education to individuals who will provide advance care planning services or palliative care in the hospital, hospice, home, community, and long-term care settings; and developing curricula or teaching materials related to advance care planning or palliative care in such settings.
The Secretary may award grants to public or private entities (including States, political subdivisions of States, faith-based organizations, and religious educational institutions), or a consortium of any such entities, to establish and maintain an Internet website and telephone hotline to disseminate resources developed under subsection
(a)and materials for faith communities designed by the Department of Health and Human Services Center for Faith-Based and Neighborhood Partnerships. In determining whether to award a grant under paragraph (1), the Secretary shall take into account the ability of an entity to sustain the activities described in paragraph
(1)beyond the initial grant period. The Secretary may award grants to public or private entities (including States, political subdivisions of States, faith-based organizations, and religious educational institutions) to conduct a national public education campaign to raise public awareness of advance care planning and advanced illness care, including the availability of the resources created under this section. The Secretary may award grants to eligible entities for the purposes of carrying out the activities under paragraph (2). Activities funded through a grant under this section for an area may include— establishing and operating a National Resource Center on POLST Programs to provide— technical assistance and professional training to programs for orders for life-sustaining treatment; analysis and dissemination of best practices in implementing program for orders for life-sustaining treatment; voluntary standards for the establishment and operation of program for orders for life-sustaining treatment; and compilations and summaries of recently conducted research and other resources relevant to program for orders for life-sustaining treatment; developing such a program for the area that includes hospitals, home care, hospice, long-term care, community and assisted living residences, skilled nursing facilities, and emergency medical services within a State; and expanding an existing program for orders regarding life-sustaining treatment to serve more patients or enhance the quality of services, including educational services for patients and patients’ families, training of health care professionals, or establishing an orders for life-sustaining treatment registry. In this subsection— the term eligible entity means— an academic medical center, a medical school, a State health department, a State medical association, a multistate task force, a hospital, or a health system capable of administering a program for physician orders regarding life-sustaining treatment for a State; or any other health care agency or entity as the Secretary determines appropriate; and the term program for orders for life-sustaining treatment means a program that, regardless of its name— implements a clinical process designed to facilitate shared, informed medical decisionmaking and communication between health care professionals and patients with serious, progressive illness or frailty and results in a set of medical orders that— are consistent with the national standard as reflected by the National POLST Paradigm, representing health care providers, organizations, and stakeholders; are portable and honored across care settings; and address key medical decisions consistent with the patient’s goals of care; and is guided by a coalition of stakeholders, such as patient advocacy groups and representatives from across the continuum of health care services, disability rights advocates, senior advocates, emergency medical services, long-term care, medical associations, hospitals, home health, hospice, palliative care, nursing associations, the State agency responsible for senior and disability services, faith-based groups, and the State department of health. There are authorized to be appropriated to the Secretary, for purposes of awarding grants under this section, $50,000,000 for the period of fiscal years 2018 through 2022. None of the funds appropriated under paragraph
(1)shall be used to— develop a model advance directive; develop or employ a dollars-per-quality adjusted life year (or similar measure that discounts the value of a life because of an individual's disability); or make a grant to a private entity that advocates, promotes, or facilitates any item or procedure for which funding is unavailable under the Assisted Suicide Funding Restriction Act of 1997 ( Public Law 105–12 ).
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- Pub. L. 105-12
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Sec. 9
Grants for increasing public awareness and training
Pub. L.Pub. L. 105-12
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