Sec. 304. Survivorship demonstration project
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Not later than one year after the date of the enactment of this Act, the Secretary of Health and Human Services (referred to in this section as the Secretary ) shall carry out a demonstration project over a 3-year period, designed to improve the quality and efficiency of care provided to childhood cancer survivors throughout their lifespan, through improved care coordination as survivors transitions to adult care. The Secretary shall ensure that the maximum number of sites does not exceed 10.
In selecting entities to participate in the demonstration project, the Secretary shall, to the extent practicable, include in such selection— small-, medium-, and large-sized sites; and sites located in different geographic areas. The activities conducted under the demonstration project under subsection
(a)may, in addition to any other activity specified by the Secretary, include activities that seek to develop different models of care coordination, including transitions of care, follow-up care, monitoring, and other survivorship related programs that utilize a multidisciplinary, team based approach to care, including any of the following activities: Coordination of care and transitions of care between cancer care providers, primary care physicians, mental health professionals and any other relevant providers. Dissemination of information to, and training of, health care providers about linguistically and culturally competent follow-up care specific to cancer survivors. Development of monitoring programs for cancer survivors and their families. Incorporation of peer support and mentoring programs to improve the quality of life of cancer survivors. Designing systems and models for the effective transfer of treatment information and care summaries from cancer care providers to other health care providers (including risk factors and a care plan). Evaluation of functional status and incorporation of specific functional needs into the care planning process. Dissemination of the information on activities and programs conducted under this section to other health care providers (including primary care physicians) and to cancer survivors and their families, where appropriate. Other items determined by the Secretary. The Secretary shall use the following measures to assess the performance of each site: Patient care and satisfaction measures. Resource utilization measures. Adult survivorship measures. The Comptroller General of the United States shall submit a report to Congress evaluating the success of the demonstration project. Such report shall include an assessment of the impact of the project upon the quality and cost-efficiency of services furnished to individuals under this title, including an assessment of the satisfaction of such individuals with respect to such services that were furnished under such project. Such report shall include recommendations regarding the possible expansion of the demonstration project.