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Code · BILL · 114th Congress · H.R. 5555 (Introduced in House) — To amend titles XVIII and XIX of the Social Security Act to improve end-of-life care and advanced illness management. · Sec. 10

Sec. 10. Advance Care Planning Advisory Council

324 words·~1 min read·/bill/114/hr/5555/ih/section-10·

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Not later than 180 days after the date of the enactment of this Act, the Secretary of Health and Human Services (in this section referred to as the Secretary ) shall establish within the Office of the Secretary an advisory committee to be known as the Advance Care Planning Advisory Council (in this section referred to as the Council ). The Council shall advise the Secretary regarding the compilation, development, and dissemination of resources for individuals facing advanced and terminal illness.
Responsibilities of the council include the following: Ensuring that resources provided contain non-biased information about the range of options available to individuals with advance and terminal illness, including information about conventional, curative treatments, palliative care, and hospice care. Developing strategies for increasing public understanding about advanced illness and the important role advance care planning can play in documenting an individual’s wishes for medical care for loved ones in the event that individual cannot communicate the individual’s his or her wishes.
Compiling information for dissemination regarding existing advance care planning models including POLST, MOLST, advance directives, and healthcare proxies. Promoting interagency coordination and minimizing overlap regarding advance care planning, including opportunities to coordinate efforts between the Federal agencies and external stakeholders. Identifying and evaluating cross-cutting issues such as perinatal end-of-life care and advance care planning access issues. The Council shall be composed of up to 15 members appointed by the Secretary from among qualified individuals who are not officers or employees of the Federal Government.
The members of the Council shall include the following: At least 3 members with clinical training and an expertise in advanced illness or end-of-life care. At least 3 members from patient and family advocacy groups. At least 3 members from religious or spiritual organizations. Other members from interested stakeholder groups with a proven expertise in chronic, advanced, and end-of-life care. The Council shall be treated as an advisory committee subject to the Federal Advisory Committee Act (5 U.S.C.
App.).
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