Sec. 252. National Mortality Followback Survey
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Not later than December 31, 2015, and annually thereafter, the Secretary, acting through the Director of the Centers for Disease Control and Prevention, shall renew and conduct the National Mortality Followback Survey (referred to in this section as the Survey ) to collect data on end-of-life care. The purpose of the Survey shall be to gain a better understanding of current end-of-life care in the United States. In conducting the Survey, the Director of the Centers for Disease Control and Prevention shall, at a minimum, include the following questions with respect to the loved one of a respondent:
Did he or she have an advance directive, and if so, when it was completed. Did he or she have an order for life-sustaining treatment, and if so, when was it completed. Did he or she have a durable power of attorney, and if so, when it was completed. Had he or she discussed his or her wishes with loved ones, and if so, when. Had he or she discussed his or her wishes with his or her physician, and if so, when. In the opinion of the respondent, was he or she satisfied with the care he or she received in the last year of life and in the last week of life.
Was he or she cared for by hospice, and if so, when. Was he or she cared for by palliative care specialists, and if so, when. Did he or she receive effective pain management (if needed). What was the experience of the main caregiver (including if such caregiver was the respondent), and whether he or she received sufficient support in this role. Additional questions to be asked during the Survey shall be determined by the Director of the Centers for Disease Control and Prevention on an ongoing basis with input from relevant research entities.