Sec. 2. Initiative through the Director of the National Institutes of Health
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Section 404E of the Public Health Service Act ( 42 U.S.C. 283g ) is amended— in subsection (a)(1)— by striking Muscoskeletal and inserting Musculoskeletal ; and by inserting Becker, congenital muscular dystrophy, limb-girdle muscular dystrophy, after Duchenne, ; in subsection (b)— in paragraph (2)— by striking genetics, at the second place it appears; and by inserting cardiac and pulmonary function, and after imaging, ; and in paragraph (3), by inserting and sharing of data after regular communication ; in subsection (d)— in paragraph (2)— in the matter preceding subparagraph (A), by striking 15 and inserting 18 ; and in subparagraph (A)— by striking and the Food and Drug Administration and inserting , the Food and Drug Administration, and the Administration for Community Living ; by inserting and adults after children ; and by striking such as the Department of Education and inserting including the Department of Education and the Social Security Administration ; and in paragraph (4)(B), by inserting , but shall meet no fewer than two times per calendar year before the period; and in subsection (e)— in paragraph (1)— in the matter preceding subparagraph (A), by striking through the national research institutes and inserting through the agencies represented on the Coordinating Committee pursuant to subsection (d)(2)(A) ; and in subparagraph (A)— by inserting public services, before and rehabilitative issues ; and by inserting , studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, and studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy after including studies of the impact of such diseases in rural and underserved communities ; and in paragraph (2)(D), by inserting after including new biological agents the following: and new clinical interventions to improve the health of those with muscular dystrophy .
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Sec. 2
Initiative through the Director of the National Institutes of Health
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