Sec. 6. Quality of life cross-agency advisory committee
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Part W of title III of the Public Health Service Act, as added by section 4 and amended by section 5, is further amended by adding at the end the following new section: Not later than 90 days after the date of the enactment of this section and subject to subsection (e), the Secretary shall establish a Quality of Life Cross-Agency Advisory Committee (in this section to be referred to as the Advisory Committee ) to advise, coordinate, and assist the Centers for Disease Control and Prevention and the Health Resources and Services Administration in creating and conducting the national quality of life education and awareness initiative under section 399OO and the health care professional workforce training initiative under section 399OO–1 and disseminate findings that have been identified from such initiatives for cross agency implementation of best practices.
The Advisory Committee shall be composed of members who shall be appointed by the Secretary and shall include representatives of— the Department of Health and Human Services, including from the Centers for Disease Control and Prevention, the Health Resources and Services Administration, the Agency for Healthcare Research and Quality, the Centers for Medicare & Medicaid Services, and the National Institutes of Health; the Department of Veterans Affairs; the Department of Defense; public and private organizations with expertise in patient-centered care, palliative care, psychosocial care, and symptom management and survivorship; and such other representatives as the Secretary deems necessary.
The Advisory Committee shall— evaluate the results of the programs funded by the grants awarded under section 399OO(b) and under section 399OO–1(b); coordinate and implement a cross-agency strategic plan, with respect to the agencies specified in subsection (b), to disseminate findings from such programs; advise the Secretary of Health and Human Services on strategies for disseminating across agencies specified in subsection
(b)recommendations from the National Action Agenda described in section 3(c)(1) of the Patient Centered Quality Care for Life Act ; consider and summarize recent advances achieved in symptom management and survivorship research relevant to the goals of this part and make recommendations to the Director of the National Institutes of Health on gaps in basic, clinical, behavioral, or other research required to achieve further improvements in care to support quality of life and survivorship; develop a strategy for developing new and enhancing health surveillance tools used to track symptoms, late effects, and quality care trends over time, including national surveys of the overall population of the United States, such as the National Health Interview Survey and the Behavioral Risk Factor Surveillance System conducted by the Centers for Disease Control and Prevention and the Health Information National Trends Survey conducted by the National Institutes of Health, as well as administrative databases and disease registries such as databases of the Centers for Medicare & Medicaid Services, the Surveillance Epidemiology and End Results
(SEER)cancer registries program of the National Cancer Institute, the SEER–Medicare Linked Database of the National Cancer Institute, and the National Program of Cancer Registries of the Centers for Disease Control and Prevention; and make appropriate updates and addendums annually to the National Action Agenda. The Advisory Committee shall meet at least once a year. There are authorized to be appropriated to carry out this section such sums as are necessary for each of the fiscal years 2014 through 2019. .