Sec. 1014. Report on the health of the Middle Eastern and North African population
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The Secretary of Health and Human Services (referred to in this section as the Secretary ) shall conduct or support a comprehensive study regarding the unique health patterns and outcomes of Middle Eastern and North African (referred to in this section as MENA ) populations. The comprehensive study under subsection
(a)shall include an enumeration of MENA populations across the United States, disaggregated by subpopulation, and with respect to each such population and subpopulation— the rates of— obesity, diabetes, sickle cell anemia, stroke, asthma, pneumonia, lung cancer, HIV/AIDS, HPV, high cholesterol, high blood pressure, and chronic heart, lung, and kidney disease; morbidity and mortality, including the rates of morbidity and mortality associated with the health conditions listed in subparagraph (A); mental health and substance use disorders; and domestic violence, dating violence, sexual assault, sexual harassment, and stalking; analysis of— the rates described in paragraph (1); the leading causes of pregnancy-associated morbidity and mortality; and access to health care facilities and the associated outcomes of care; analysis, enumeration, or quantification of any other health or health-related parameters the Secretary may determine necessary; and analysis of the relationship between the health factors, outcomes, and conditions described in paragraphs
(1)through
(3)and the implementation of Federal health programs. The Secretary shall— carry out this section in consultation, as appropriate, with the Director of the Census Bureau, the Director of the Centers for Disease Control and Prevention, the Director of the National Institutes of Health, the Assistant Secretary for Mental Health and Substance Use, and other stakeholders (including community-based organizations); and determine through such consultation the subpopulations to be used for purposes of disaggregation of data pursuant to subsection (b). Upon conclusion of the comprehensive study under this section, the Secretary shall establish a public online portal to catalogue the results of the study, its underlying data, and information in the report submitted pursuant to subsection (e). Not later than 2 years after the date of enactment of this Act, the Secretary shall submit to Congress a report outlining the challenges associated with, and progress towards implementing health data collection for MENA populations as a distinct category and the plan for completing a comprehensive study regarding the unique health patterns and outcomes of MENA populations. Not later than 30 days after the conclusion of the comprehensive study under this section, the Secretary shall submit to Congress a report describing— the results of the study conducted under this section; and the rulemakings and other actions the agencies described in subsection (c)(1) can undertake to more equitably include MENA individuals in their programs. The Secretary shall not include any personally identifiable information on the online portal under subsection
(d)or in a report under subsection (e). In this section, the terms Middle Eastern and North African or MENA , with respect to individuals or populations, includes individuals and populations who identify with or belong to one or more nationalities or ethnic groups originating in a country (or portion thereof) in the Middle Eastern and North African region (such as Lebanese, Iranians, Egyptians, Moroccans, Yemenis, Chaldeans, Imazighen, Kurds, Palestinians, and Yazidis).