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Code · BILL · 117th Congress · S. 5295 (Introduced in Senate) — To address the health of cancer survivors and unmet needs that survivors face through the entire continuum of care fr... · Sec. 10

Sec. 10. Comprehensive cancer survivorship program

1,286 words·~6 min read·/bill/117/s/5295/is/section-10

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The Secretary shall carry out a comprehensive cancer survivorship program that includes— a cancer survivorship resource center in accordance with subsection
(b)to provide evidence-based resources to cancer survivors, their families, and their caregivers; a health care professional resource center in accordance with subsection
(c)to assist and educate health care professionals in the delivery of high-quality survivorship care; an educational campaign in accordance with subsection
(d)to provide health care professionals with resources to improve cancer survivorship care; and a program of supportive care services in accordance with subsection
(e)to improve the quality of life and long-term survivorship of cancer survivors. The Secretary shall establish and operate a survivorship resource center (in this subsection referred to as the Center ) that serves as a comprehensive source of information and resources related to survivorship. Not later than 2 years after the date of enactment of this Act, the Secretary shall establish and begin operation of the Center. In establishing and operating the Center, the Secretary shall consult with cancer survivors, patient organizations, health professionals, researchers, health education organizations, oncology professional societies and other medical societies, community-based organizations, and science education organizations regarding— the information and resources that would assist cancer survivors in managing the survivorship experience and obtaining high-quality care across the continuum of care; gaps in such information and resources that need to be addressed to respond to the needs of cancer survivors; and optimal strategies for ensuring that cancer survivors have access to the Center, including strategies that provide virtual options, online resources, and marketing. In establishing and operating the Center, the Secretary shall, with permission and attribution, rely on and utilize the evidence-based materials and resources developed, collected, and distributed by cancer organizations. The Secretary shall establish and operate a health care professional resource center (in this subsection referred to as the Center ) that serves as a comprehensive source of information and resources to assist health care professionals in the delivery of high-quality survivorship care. In establishing and operating the Center, the Secretary shall reference cancer survivorship guidelines developed by cancer care professional societies, patient organizations, research foundations, and other health care professional societies in the development of materials related to survivorship care. In establishing and operating the Center, the Secretary shall facilitate collaboration between cancer care specialty societies and primary care provider organizations in the development of standards for survivorship care, including standards for coordination of care and transitions of care from active treatment to long-term survivorship care. The Secretary acting through the Director of the Centers for Disease Control and Prevention (in this subsection referred to as the Secretary ) shall— expand educational programs and services to— health care professionals; and cancer survivors, their families, and caregivers; and enhance the continuing medical education resources on cancer survivorship that are available to health care professionals. The Secretary shall expand collaborations with organizations that are part of the Comprehensive Cancer Control National Partnership and other organizations to focus on increasing education and awareness related to cancer survivorship through materials, resources, and other methods as necessary. The Secretary shall collaborate with the organizations that are part of the Comprehensive Cancer Control National Partnership and other organizations to inform cancer survivors of survivorship monitoring and follow-up standards, availability of survivorship care services, and how to access these services. In collaboration with the organizations that are part of the Comprehensive Cancer Control National Partnership, the Secretary shall— develop and implement a plan to distribute survivorship educational materials to ensure that such materials are accessible to all cancer survivors, their families and caregivers, and health care professionals; and reference in such plan the survivorship standards of care developed and published by such organizations. The Secretary shall carry out a program to support the development of continuing medical education programs for survivorship care that utilize and rely on the guidelines for survivorship care developed and published by national organizations. Not later than 12 months after the date of enactment of this Act, the Secretary shall initiate the program required by subparagraph (A). The Secretary shall award grants to eligible entities for development of diverse, equitable, and culturally appropriate curricula for survivorship care curriculum for medical care. In this subparagraph, the term eligible entity includes a medical professional society, a patient organization, an academic institution, a cancer center, and any other entity with experience in continuing medical education for cancer professionals. To receive a grant under this section, an applicant shall demonstrate its ability to develop survivorship care curriculum for medical care, taking into consideration services from the legal, social work, public health, behavioral sciences, genetic, epidemiology, and nursing fields. The Secretary, at an appropriate time after the availability of patient survivorship materials, professional survivorship materials, and continuing medical education programs under this subsection, shall initiate a linguistically and cultural appropriate public awareness campaign that targets the organization's catchment area to ensure that cancer survivors, their families and caregivers, health care professionals, and the public are aware of the scope of survivorship educational and informational resources available from the Centers for Disease Control and Prevention. The Secretary acting through the Director of the Centers for Disease Control and Prevention (in this subsection referred to as the Secretary ) shall carry out a program of awarding grants to eligible entities to provide services to cancer survivors to enhance their quality of life and improve their long-term survival rates. Not later than 18 months after the date of enactment of this Act, the Secretary shall commence operating such program. In this subsection, the term eligible entity includes an entity that is— a State comprehensive cancer program; a National Cancer Institute-designated cancer center or centers; or a community-based organization, including a patient advocacy organization, that— has the capacity to reach cancer survivors through local, State, or national organizations; and is focused on cancer survivors and strategies for meeting their needs related to their health and well-being. A grant received under this subsection shall be used to provide services to cancer survivors to enhance their quality of life and improve their long-term survival rates, such as by assisting survivors to— engage in moderate physical activity and other health-promoting activities, including ceasing tobacco use and increasing consumption of healthy foods; increase access to support services to mitigate anxiety, depression, and uncertainty; utilize community support services to fully implement survivorship care plans; access nutrition education and counseling; and adhere to a schedule for, and access, screening for recurrence of cancer or the occurrence of other primary cancers. To seek a grant under this subsection, an eligible entity shall submit an application, at such time as may be required by the Secretary, that includes— an explanation of how the entity will— provide cancer survivors access to cancer patient navigator services; overcome barriers to care for communities of color and multilingual communities; provide culturally competent care; and work with and support caregivers of cancer survivors; a description of how the entity receives referrals of cancer survivors from health care professionals, including health care professionals serving historically disadvantaged and underserved communities; documentation of the curriculum that will be used for providers in the program, including mechanisms to update the staff on curriculum changes; and an agreement to provide the Secretary semiannual reports on— the number of participants served; quality-of-life measures for participants; and plans for fostering communication between oncology and non-oncology providers serving participants. The Secretary shall— conduct outreach to inform health care professionals of the availability of programs and activities funded under this subsection; analyze the data submitted by grantees under this subsection to determine the number of cancer survivors served and the impact of the program under this subsection on their quality of life; and share best practices among all grantees under this subsection.
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