Sec. 2. Authorization To Fund Research Of The Long-Term Symptoms Of COVID–19 By The Patient-Centered Outcomes Research Trust Fund
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The Patient-Centered Outcomes Research Trust Fund under section 1181 of the Social Security Act ( 42 U.S.C. 1320e(b) ) shall fund research described in subsection (b). For purposes of subsection (a), research described in this subsection shall include— prior to creating a patient registry described in paragraph (2), survey existing patient registries that include individuals experiencing post-acute sequelae of COVID–19 (in this section, referred to as PASC ); creating a patient registry for those with COVID–19 with information that— contains the— symptoms that arise while an individual is initially infected with COVID–19 and that resolve over time; symptoms that arise while an individual is initially infected with COVID–19 and that extend beyond the resolution of initial symptoms; symptoms that arise after an individual is initially infected with COVID–19 and that endure and that the clinician of such individual has reason to suspect were related to the COVID–19 diagnosis; symptoms that arise in an individual that may be related to COVID–19 but a diagnosis of COVID–19 was not obtained and cannot be identified due to a lack of antibodies, false negative test results, or lack of access to timely testing; treatments of individuals after primary diagnosis to COVID–19 and the effectiveness of such treatments disaggregated by age, gender, race or ethnicity, and co-morbidities and related post-viral illnesses overlapping with PASC; and any other relevant questions or issues related to individuals who experience a diagnosis of, treatment for, and management of care with COVID–19, PASC, or related post-viral illnesses overlapping with PASC; and synthesizes information relating to individuals experiencing post-acute sequelae of COVID–19 identified from the survey described in paragraph
(1)and information under the patient registry described in paragraph (2); and outreach and inclusion (as appropriate) individuals from communities with PASC, traditional health 3 disparities and inequities and related post-viral illnesses overlapping with PASC. Not later than 1 year after the establishment of the synthesized patient registry described in subsection (a)(2), and annually thereafter, the Patient-Centered Outcomes Research Institute shall submit data, findings, and information with respect to the status of the patient registry (including progress, barriers, and issues) to Congress and the President. There is hereby authorized $30,000,000 for fiscal year 2022 to carry out this section, which shall remain available until expended.
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Sec. 2
Authorization To Fund Research Of The Long-Term Symptoms Of COVID–19 By The Patient-Centered Outcomes Research Trust Fund
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