Sec. 575. Tribal funding to research health inequities including COVID–19
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Not later than 6 months after the date of enactment of this Act, the Director of the Indian Health Service, in coordination with Tribal Epidemiology Centers and other Federal agencies, as appropriate, shall conduct or support research and field studies for the purposes of improved understanding of Tribal health inequities among American Indians and Alaska Natives, including with respect to— disparities related to COVID–19; public health surveillance and infrastructure regarding unmet needs in Indian country and Urban Indian communities; population-based health disparities; barriers to health care services; the impact of socioeconomic status; and factors contributing to Tribal health inequities.
In carrying out this section, the Director of the Indian Health Service shall— consult with Indian Tribes and Tribal organizations; confer with Urban Indian organizations; and coordinate with the Director of the Centers for Disease Control and Prevention and the Director of the National Institutes of Health. Not later than 60 days after the date of enactment of this Act, the Director of the Indian Health Service shall establish a nationally representative panel to establish processes and procedures for the research and field studies conducted or supported under subsection (a).
The Director shall ensure that, at a minimum, the panel consists of the following individuals: Elected Tribal leaders or their designees. Tribal public health practitioners and experts from the national and regional levels. The panel established under subsection
(c)shall, at a minimum— advise the Director of the Indian Health Service on the processes and procedures regarding the design, implementation, and evaluation of, and reporting on, research and field studies conducted or supported under this section; develop and share resources on Tribal public health data surveillance and reporting, including best practices; and carry out such other activities as may be appropriate to establish processes and procedures for the research and field studies conducted or supported under subsection (a). Not later than 1 year after expending all funds made available to carry out this section, the Director of the Indian Health Service, in coordination with the panel established under subsection (c), shall submit an initial report on the results of the research and field studies under this section to— the Committee on Energy and Commerce and the Committee on Natural Resources of the House of Representatives; and the Committee on Indian Affairs and the Committee on Health, Education, Labor and Pensions of the Senate. The Director of the Indian Health Service shall ensure that all research and field studies conducted or supported under this section are tribally-directed and carried out in a manner which ensures Tribal-direction of all data collected under this section— according to Tribal best practices regarding research design and implementation, including by ensuring the consent of the Tribes involved to public reporting of Tribal data; according to all relevant and applicable Tribal, professional, institutional, and Federal standards for conducting research and governing research ethics; with the prior and informed consent of any Indian Tribe participating in the research or sharing data for use under this section; and in a manner that respects the inherent sovereignty of Indian Tribes, including Tribal governance of data and research. Not later than three months after the end of the public health emergency declared pursuant to section 319 of the Public Health Service Act ( 42 U.S.C. 247d ) with respect to COVID–19, the Director of the Indian Health Service shall— update and finalize the initial report under subsection (e); and submit such final report to the committees specified in such subsection. In this section: The terms Indian Tribe and Tribal organization have the meanings given to such terms in section 4 of the Indian Self-Determination and Education Assistance Act ( 25 U.S.C. 5304 ). The term Urban Indian organization has the meaning given to such term in section 4 of the Indian Health Care Improvement Act ( 25 U.S.C. 1603 ). There is authorized to be appropriated to carry out this section $25,000,000, to remain available until expended.
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Sec. 575
Tribal funding to research health inequities including COVID–19
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