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Code · BILL · 115th Congress · H.R. 820 (Introduced in House) — To maximize discovery, and accelerate development and availability, of promising childhood cancer treatments, and for... · Sec. 202

Sec. 202. Grants to improve care for pediatric cancer survivors

336 words·~2 min read·/bill/115/hr/820/ih/section-202

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Section 417E of the Public Health Service Act ( 42 U.S.C. 285a–11 ), as amended by section 101, is further amended— in the section heading, by striking and inserting research and awareness ; and research, awareness, and survivorship by striking subsection
(b)and inserting the following: The Director of NIH, in coordination with ongoing research activities, may conduct or support pediatric cancer survivorship research including in any of the following areas: Needs and outcomes of pediatric cancer survivors within minority or other medically underserved populations. Health disparities in pediatric cancer survivorship outcomes within minority or other medically underserved populations. Barriers that pediatric cancer survivors within minority or other medically underserved populations face in receiving follow-up care. Familial, socioeconomic, and other environmental factors and the impact of such factors on treatment outcomes and survivorship. In conducting or supporting research under subparagraph (A)(i) on pediatric cancer survivors within minority or other medically underserved populations, the Director of NIH shall ensure that such research addresses both the physical and the psychological needs of such survivors, as appropriate. The Director of NIH, in coordination with ongoing research activities, may conduct or support research on follow-up care for pediatric cancer survivors, including in any of the following areas: The development of indicators used for long-term patient tracking and analysis of the late effects of cancer treatment for pediatric cancer survivors. The identification of risk factors associated with the late effects of cancer treatment. The identification of predictors of adverse neurocognitive and psychosocial outcomes. The identification of the molecular underpinnings of long-term complications. The development of risk prediction models to identify those at highest risk of long-term complications. Initiatives to protect cancer survivors from the late effects of cancer treatment, by developing targeted interventions to reduce the burden of morbidity borne by cancer survivors. Transitions in care for pediatric cancer survivors. Training of professionals to provide linguistically and culturally competent follow-up care to pediatric cancer survivors. Different models of follow-up care. Examining the cost-effectiveness of the different models of follow-up care. .
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  • 42 USC 285a–11
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Sec. 202
Grants to improve care for pediatric cancer survivors
Cite42 USC 285a–11
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