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Code · BILL · 114th Congress · H.R. 2480 (Introduced in House) — To increase research, education, and treatment for cerebral cavernous malformations. · Sec. 4

Sec. 4. Centers for Disease Control and prevention cerebral cavernous malformations surveillance and research programs

286 words·~1 min read·/bill/114/hr/2480/ih/section-4

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Part B of title III of the Public Health Service Act ( 42 U.S.C. 243 et seq. ) is amended by inserting after section 317T the following: The Secretary, acting through the Director of the Centers for Disease Control and Prevention, may award grants in such sums as may be necessary and cooperative agreements to public or nonprofit private entities (including State health departments, political subdivisions of States, universities, and other medical or educational entities) for the collection, analysis, and reporting of data on cerebral cavernous malformations (referred to in this section as CCM ).
The Secretary of Health and Human Services shall award grants and cooperative agreements, including technical assistance, to public or nonprofit private entities for— the collection, analysis, and reporting of data on CCM; and epidemiological activities, including collecting and analyzing information on the number, incidence, correlates, and symptoms of cases and the clinical utility of specific practice patterns. The Secretary shall— provide for a national surveillance program for the purpose of carrying out epidemiological activities regarding CCM, including collecting and analyzing information on the number, incidence, correlates, and symptoms of cases of CCM and the clinical utility (including costs and benefits) of specific practice patterns; and wherever possible, ensure that the surveillance program is coordinated with the data and sample collection activities of the National Institutes of Health under section 409K.
In making awards under this section, the Secretary may provide direct technical assistance, including personnel support. The Secretary shall ensure that epidemiological information is made available to clinical centers as supported by the Director of the National Institutes of Health under section 409K. There are authorized to be appropriated such sums as may be necessary to carry out this section. .
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Sec. 4
Centers for Disease Control and prevention cerebral cavernous malformations surveillance and research programs
U.S.C.§ 243
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